1. < Brain & Nervous System

The Pain in CRPS

Posted by barbbie @barbbie, Mar 24, 2019

@rsnowflake, @mam14,

One of the things I find the most annoying about this pain is its movement and varying intensities. Sometimes it doesn't stay very long in one place and it ups and moves elsewhere.To use a pain patch is tough because it can move so much. The intensities range from ache to very sharp. How would you describe your pain in location and intensity? I also have small fiber neuropathy, myofascial pain, DDD, raynauds, costa chondritis, and arthritis which are all pain producers so it may be hard for me to pick out what is what.

Interested in more discussions like this? Go to the Brain & Nervous System Support Group.

barbbielor | @barbbielor | Dec 5 10:54am
In reply to @karel "I have had shingles for 6 years on my buttocks. Which left me with CRPS. It..." + (show)
@karel

I have had shingles for 6 years on my buttocks. Which left me with CRPS. It finally left in 2019. with some bouts of burning in legs, but that was it until now. I recently had to have 3 cervical epidurals for nerves pressing on my neck to my arm. Now the burning on my buttocks came back. No shingles, no redness, just hot.

I have found 2 things, that help Pennsaid Oil 2% . Its very expensive, insurance may cover it, if you do a prior authorization, and then Aloe Vera Gel, pure gel . Walmart sells it for $4.95 a 32 ounce bottle. It seems to
keep the burning away or calmed down right away but it returns . So you must keep on applying it.

I wish all who have CRPS pain free days.

Jump to this post

Thank you for your suggestions about burning pain. I have ad CRPS at least for 16 years. Mine started afer poor foot surgery and has spread from right foot to left foot and has moved up left leg to left buttock. I have recently been dx with lyphedema. I just read CRPS can cause lymphedema! Lyphedema treatment is pathetic! No one doctor deals with it a a whole. I have seen a vascular surgeon for my legs and an OT for my arms. I believe I have it on the right side of my face and so I have an appt with my ENT! My PT feels there is lymphedema at the base of my neck and right side of sacrum. I have no clue who will deal with those. Weight gain is erratic. I use a pump on my legs two times a day for an hour each time. I recently bought an Ellipse to help with circulation. I have been waiting for two years to get my power chair replaced. My current chair is 7 years old and in need of help. Looking at finally getting info to Medicare after Workers Comp denied it. Such a mess and so time consuming. Thankfully Medicare does provide power chairs for people having CRPS.

REPLY
View MoreView Less
Please sign in or register to post a reply.