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Mycobacterium abscessus and ARIKAYCE

MAC & Bronchiectasis | Last Active: Dec 20, 2024 | Replies (21)
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@jamyhollon

I am currently finishing Arikayce treatment day 28. I have M. abssessus but additionally later MAC +. Did not begin the Arikayce until I failed linezolid and tedizolid. The Arikayce was specifically for M. abssessus but I was also told (I think) to treat MAC as well. So, a little bit different than your situation.

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Replies to "I am currently finishing Arikayce treatment day 28. I have M. abssessus but additionally later MAC..."
toms1982 | @toms1982 | Dec 20, 2024

I started with Arikace IV treatment two weeks ago. Besides getting extremely sick right away it started shutting down my kidneys (did permanent damage). They stopped that drug and switch to another 2 drugs by IV and are running it a half the dosage right now and I will be on them for the next 4 moths. Next week they start me on the Arosal version of arikace so it will go directly to my lungs and bypass the kidneys. Will see how that works out.

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