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Did your MAC symptoms improve once you started Big3?

MAC & Bronchiectasis | Last Active: Dec 5, 2024 | Replies (24)
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@jamyhollon

Hello, thanks for your response. Some additional information is that I am unsure if they said I have cavities or not. There are for sure nodules. My team does treat a lot of MAC patients and consults with NJH regularly. All courses of treatment so far have been per NJH’s recommendations.

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Replies to "Hello, thanks for your response. Some additional information is that I am unsure if they said..."
pacathy | @pacathy | Dec 5, 2024

I’d suggesting making a list of your questions, especially your burning ones like risks vs benefit, and discuss with the doc you feel would take questions seriously. I asked about cavities because, from reading here, it seems those are important to get under control. You might be able to see your CT results on the portal.
It seems you have a good team. For me, that a key to trusting their judgement. You could also ask about starting the drugs a bit more gradually to see how you tolerate them-may not be desirable.
Hopefully, others will chime in. Sometimes, posts can get lost in threads.

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