I have had Scans read wrong
I think private places don’t really know what they are looking for
I always use to get a copy of my scans when i went to a private place because my liver surgeon was great at pulling them up in front of me and showing me comparisons
Unfortunately that ended when the cancer returned and I needed to see an oncologist
Long story short
My first NET oncologist was great but I had to travel and lanreotide gave me sever diarrhea immediately
So I switched to another NET oncologist that put me on Ocreotide at a cancer center very close to home
Perfect situation
Be careful what you wish for
9 months of treatments and I was getting sicker even though she was telling me the only thing happening was my liver tumors were multiplying so I did a blan embolization
She reviewed my scans in front of me and totally missed the cancer had spread to my spine
Time is so important with this disease
I didn’t know she had missed it until I went back to my original NET oncologist he sent out my scans to be read by a cancer radiologist
I was mortified
I had another Blan embolization to the other side
Moral to the story
Don’t believe what is on the reports unless you have a great radiologist reading your scans
Get copies of all your scans keep them and bring them with you so they can be looked at by whomever you go to
Also I just did an MRI which showed no cancer in my cervical spine but the PET scan did
Remember PET scans pick up the cancer MRIs show the growth
It’s very frustrating
I wish you the best of luck