← Return to Proton Therapy: any long term side effects? Any regrets?

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@slick64

Interesting, I had proton therapy 19 months ago and right now I am going thru hell with the same symptoms. The docs can’t figure it out yet. If I ask they say no, not from that. Bullshit. It’s something. Since ending treatment in May ‘23, I have been experiencing a lot of different “issues”, and it’s only because of this site that I’m seeing this, not only myself but others as well. Right now they are looking at carpel tunnel, my x-rays all look clear to me. The biggest issue I have, is not being taken seriously when I ask. I just get a look and “NO”. Well, it’s definitely something. Right now both hands are useless. Can’t use them hardly at all and awaiting more tests.

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Replies to "Interesting, I had proton therapy 19 months ago and right now I am going thru hell..."

I had proton therapy at UFHPTI in March/April of this year. The only issue related to hands that I experienced was that both of my hands suddenly cramped and turned into useless claws when I was driving home. I've never had my hands cramp like that before and am not sure what, if anything, proton therapy has to do with it other than I was drinking a lot more water than usual during treatment. To alleviate the cramping and restore the use of my hands, I ate some salt. This is something I've learned to do with leg cramps in the past. I start with a quarter teaspoon of salt and chase it with some water. With me, the cramps go away almost immediately. And I know to take some electrolytes as soon as possible and so carry Medi-Lyte(R) packets, each which contains two little pills consisting of small amounts of Calcium, Potassium and Magnesium. Now I also carry a bottle of Sodium Chloride (salt) 1 gram tablets for emergencies. This takes care of the muscle cramping. The only other issue I'm experiencing is I walk slower and notice both hips are fatigued on long walks. I attribute this to the proton beams shooting in through my hips on each side for 29 sessions. Bike riding is fine, so I do that more than even thinking of going on hour long walks anymore.