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My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 3 hours ago | Replies (578)
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@katgob

It sure is quiet out there. I only remember my day past transplant when i check my notes on my phone. April 9th. My hair is finally covering my head. A bit red still but more brownish. I need more to know. Having lost all my hair in late 2021 has not made this time easier in terms of how fast it grows. I do want to say a friend had said once as my hair hit my shoulders in 2023 if i wanted to go get my hair cut to trim my split ends. Split ends I said? All my hair is brand new!!!!
I went to the dermatologist last Wednesday and he burned off three spots and said come back in a year. Unless something looks odd. This and a colonoscopy result of see you in ten years is a blessing after cancer and a bone marrow transplant.
Walking no less than 12,000 steps a day..................a 2nd Birthday from the bone marrow transplant got me to commit.

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Replies to "It sure is quiet out there. I only remember my day past transplant when i check..."
Lori, Volunteer Mentor | @loribmt | Dec 5 8:52am

Hi Kat! We go through spits and spurts in some of the discussions, don’t we! But it’s like with old friends…we pick up where we left off. I often think of our groups in Connect as a Kaffeeklatsch where we break during the day to spend time with ‘family and friends’… I have fond memories of my mom, aunties and gramma or mom and her neighbors sitting around the kitchen table spilling their guts along with the coffee! I think most of the world’s problems were solved around that old table! Fast forward, now it’s me chatting with strangers who have become friends, through my computer screen ☺️

Time to check in with everyone! Thanks for starting it off today, @katgob! You’ve had a heckuva year from where you and I first began our discussion on your possible BMT. Now that’s in the rear view mirror and you’re speeding through an epic recovery!! 💖
Let’s “Rock the Casbah” and bring in some of the newbies, along with some veteran Allo-transplant members this morning to see how everyone is doing! @dwolden @katgob @mary612 @graycoose @susancurrit @wakop @jrwilli1 @tkidd51 @bevprescott @alohasteve @caregiverx2 @clock456 @avaleir @alive @edb1123 @kt2013 @jenmkr63 @maryb13350
If I’ve forgotten some names please forgive me but jump into the conversation along with the veterans of our BMT group!

We all have so much for which to be thankful…not only for the 2nd chance at life that we’ve been given. But for what it allows us to achieve! It’s a constant source of inspiration for me to not take a moment for granted. That doesn’t mean I don’t waste time or that there aren’t days without some negative thoughts lurking around the corner. But I try to savor the small things in life, look for hidden joy, practice mindfulness and positive affirmations. Most days I feel like Super Woman gifted with a power! Ha ha, I wish it was her body… le sigh… Alas, my super power is being perpetually perky! That’s a power to be used with extreme caution. It can be used for good or evil!! 😅

How has your life changed since your BMT? Any super powers, changes in how you live your life? Any notes of encouragement for those just starting out in this journey?

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