← Return to Multiple Sclerosis (MS) - please introduce yourself

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@srountree3006

I have documented symptoms, flares and progression over 4 years of multiple sclerosis and my doctor will not order MRIs before testing me for lupus (no symptoms) RA and breast cancer...this seems to me like a waste of time. I understand the need to rule out similar issues but these are not similar to my very specific symptoms. She maintains (without tests) that my nerve issues are a result of diabetes I was just diagnosed with and haven't had long enough nor am I old enough to have developed such damage.

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Replies to "I have documented symptoms, flares and progression over 4 years of multiple sclerosis and my doctor..."

Hi, @srountree3006 - welcome to Connect. You will note that I moved your post to this existing discussion on MS, where you will meet others familiar with this existing diagnosis of yours.

You mentioned your doctor will not order MRIs before testing you for lupus, rheumatoid arthritis and breast cancer.

Is the MRI you were hoping would go forward to confirm your MS diagnosis, or look at the status of your MS?

**Update**My regular doctor told me I was "slightly anemic" 2 months ago and if I'm tired I should take a B12 supplement. Blood work on Wednesday revealed that I am severely low in iron. My B12 and Folate are normal.

My regular doctor said I am probably pre-menopausal despite no changes or problems in my cycle aside from being slightly heavier. She said lab work would show this via a high LH level. My LH is actually quite low.

My regular doctor said every neurological symptom I am having is related to my diabetes despite the fact that my A1C is a 5.9 and has been UNDER 6.4 FOR ALMOST TWO YEARS.

My regular doctor has literally been wrong about EVERYTHING.

My regular doctor is fired.

Saw my Endo today. We are starting with an iron supplement but with all of the gastro issues I've been having he anticipates infusion will be necessary.

These lows account for my tachycardia, exhaustion, low blood pressure, headache and dizziness and feeling cold.

He further said MRI IS ABSOLUTELY NECESSARY because all of my symptoms point to something happening in my spine. He is sending me to a physiatrist ASAP as they can do everything a neurologist would do as far as testing without the 6 month wait.

Still waiting to hear from cardio.
Scheduling endoscopy to find out why my body won't absorb iron, because I eat a lot of it.
Scheduling analysis of Scn9a gene mutation to confirm primary erythromelalgia that occurred in adolescence as strange sensation could be attributed to that history. There is a 50% probability of passing this down.