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Arachnoiditis: Looking to talk with others
Spine Health | Last Active: 3 hours ago | Replies (404)Comment receiving replies
The allopathic docs: neurosurgeons, neurologists, orthopods, radiologists, pain clinic docs and the rest say there is nothing they can do because they can’t burn cut or poison the problem away. There is no cure but that doesn’t mean it can’t be put into at least partial remission.
But you will have to go to alternative medicine and you will have to work at it long and hard.
For the best modern options for pharmaceuticals, supplements and some kinds of alternative treatments, Dr. Forrest Tennant’s book “Living Well with Arachnoiditis” is a good place to start. You can get on Amazon, including a free option on Kindle Unlimited.
I got my own initial catastrophic case from 1991 into remission using a combination of, ChiGong and TaiChi (Bruce Kumar Frantzis’ “Southern Wu Style is particularly good but other short stance styles may work too), acupuncture, cranio-sacral work, trigger point massage and injections, dealing with my celiac disease (strictly no gluten), Alexander technique, and a program of walking. It took about 15 years and lots of trial and error to get back to a semi normal life and is still a work in progress. When I started I fully expected that I would not live to see the current millennium.
Definitely worth trying and there is so much more known and available now.
Best of luck to you.
Replies to "The allopathic docs: neurosurgeons, neurologists, orthopods, radiologists, pain clinic docs and the rest say there is..."
The years I was living with this the best ones was when I was doing kick boxing and just working out w weights I was in my best shape ever. After several tradgies in my life I stopped working out and thought I could self medicate w alcohol and high heels. Lol.
Wrong !!
I've not drank in 11years. I don't work out even w PT anymore. I understand your feelings. The Aqua Ep.issues here too. It is also called some type of saddle ride syndrome. My whole body feels like it's been on a horse that has numbed my body parts to sleep. I feel like water running down my legs even though they are completely dry. This Arachnoiditis is so unbelievable. I tried explaining it to my family my Dr's etc and they look at me like I'm crazy.
I use to love working out. The injections I honestly think triggered this again in my spine. I tried injections but in my thoracic spine where I had the tumor and my surgeon scraped my bones and removed tumor from inside my spine that surgeon at that time replaced my removed tissue with "Silicone gel foam " NOW that Dr passed years ago not knowing the silicone moved thru out my body , Now I have this stuff floating thru my body and Dr's can not tell me where it is nor the effects it's had thru out my body. I have so many cysts through out my organs and body I have poly cystic kidney disease seeing a kidney specialist hopefully soon , also a gynoneurologist wanted to place a bladder stimulator inside me where I have lost control of my bladder (not completely) but I didn't have it done which was before my diagnosis. If you may feel like talking call me. 276-298-8483. We seem to have alot in common w this diagnosis
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If you wouldn't mind talking contact me. Two27sevensix62two 9nine8eight 8eight4four8eight 3three I'd like to speak about this condition bc I feel like I go for help but all Dr's want to say same things , no cure no help , go see this Dr or that Dr and it's so frustrating. I would appreciate any help . My name is Sherry