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Anyone have input on living with symptoms from cardiomyopathy?
Heart & Blood Health | Last Active: 2 days ago | Replies (58)Comment receiving replies
Saw my cardiologist today, 12-4-24 to go over blood work results, which I take every 3 months (nothing ever changes), I was told today by my Cardiologist if I don’t want to take camzyos with the side effects of death then I just have to suffer with shortness of breath…..I can’t walk more than 30 feet with out getting shortness of breath….In the house I walk very slowly and stop very often….if I leave the house I have to be in a wheelchair…..does anyone have these problems, please let me know what you have done…. Thank you in advance. MMB
Replies to "Saw my cardiologist today, 12-4-24 to go over blood work results, which I take every 3..."
have you heard of Barostim?
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I am a very weak old 64 years old man. Before I started Camzyos to treat my HOCM, I had chest pain and shortness of breath while walking specially after any meal. I put in my mind there will not be any side effects. I started Camzyos last end of March and all chest pain is gone in only 2 days of taking that medicine. At the beginning I had very mild dizziness but my body got adjusted now I have no dizziness or any side effect. I am jogging, walking very fast, having almost a normal life thanks to Camzyos. I will keep taking Camzyos till the Cardiologist ask me to stop it. This is my experience and I hope it helps. Good luck to you and I hope you get better soon!