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I finally received my Decipher test results - unfortunately my score is .92 - which ends my 2 years of AS.
I had to practically beg to get this test at Mayo Jacksonville, and it was never even mentioned by the seven other doctors I saw at other places. The urology department in Jacksonville just flat out wouldn't do it - I ended up getting it done by the radiology department.
My advice to everyone is insist on getting this test, even if it is not offered to you
Replies to "I finally received my Decipher test results - unfortunately my score is .92 - which ends..."
@hoover58
I will be careful with my words here but my experience with Mayo Jacksonville urology department was not positive. I ended up going through Patient Advocacy.
The urologist I saw was one of those that said, "you won't die of prostate cancer, it will be something else." You will also see another post I posted where the same urologist wanted to do my biopsies via rectal. And then said it has a 2% more chance of infection but "you would only have to spend a couple of days in hospital if you did get it."
I did not accept his way of doing it and challenged it and had my cardiologist get involved who advised absolutely no issues with me having anesthesia.
I advised my PCP (Mayo) if he needed to refer me again to a urologist, I did not want to see the same one.
Mayo radiology/oncology was the division that gave me the information on Decipher and offered it to me to make a more specific diagnosis of my cancer risk. My decipher score came back at low risk where my biopsies had come back as intermediate.
I have posted many many times that I strongly suggest getting additional tests like Decipher, PSMA, bone, etc. to help clarify and get more specific information on your cancer diagnosis. AND get a second opinion.
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Good advice!
Don’t understand why any physician, involved in PCa, would not want to know the information provided in their patients Decipher Patient and Decipher GRID reports, so as to be more confident in their treatment recommendations.
Decipher’s database now extends to over 200,000 genomes and the information provided is independent of one’s Gleason score….meaning one’s biopsy and/or post RP pathology report is only part of the story IF personalized treatment is being sought.
This link provides an updated video explanation of the latest Biopsy and postRP versions of the Decipher Patient Report.
https://decipherbio.com/decipher-prostate/patients/biopsy-test-report/
The next link provides a video explaining the interpretation of the 7 page Decipher GRID report.
https://decipherbio.com/decipher-prostate/physicians/decipher-grid/
Sorry to hear of your relatively high Decipher score; however, it (coupled with the information in your personalized GRID report) can be used to tailor your treatment(s) to help maximize its(their) effectiveness towards a successful outcome, for your individual situation.
IMHO, if my doctor/team didn’t think the Decipher Reports would influence their treatment recommendation for my particular case; then I’d be aggressively looking for a new doctor/team.
IMHO that kind of “one size fits all” mentality is antiquated and reeks of “Medicine 2.0”.