← Return to Multiple Sclerosis (MS) - please introduce yourself

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@brightwings

@rjader1266, @luckydog
Welcome to the crazy world of MS. I, like you guys chased my symptoms to make a difinative diagnosis with multiple docs....spent a fortune doing it. Made myself crazy listening to different docs...diagnosed and undiagnosed many times....that why in my latest post here I say I accepted my diagnosis at age 35.
That was 1986.
In 2006, I had to go on a cruise with my mom. 3 1/2 month long cruise.....It blew my MS up. With no time to rest and all the excitement of the ports of calls and shore excursions, along with living with my greatest abuser for all those months, I had EXTREME Changes in my body and especially vision.
Back to seeing new Neuro docs.....
I chose to go for my first and last dose of MS medication. Rebif....
I vowed to never take another dose of med after the changes in my personality from the med. For me the side effect of the med was RAGE, OH DID I MENTION RAGE?????????
I am the sweetest person, but not after the medicine.
My life calmed down after I realized I do have MS and that's the way it is. I learned I had to calm down and start looking for ways to make it easier for me to live along side my MS Cuz it was going to be with me for the rest of my life...
I realized each time I worried, I was sucking my energy and making my MS worse....
I started studying different methods of relaxation to give myself peace. Becoming an expert at obtaining peace ALL thru the day, allows me to live a triumphant life...with MS.
Keep coming back.....
My best suggestion I have is to accept you have this diagnosis. Each of you have been on the diagnostic merry go round long enough....and this is your choice.
My best wishes to each of you. Bright Wings

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Replies to "@rjader1266, @luckydog Welcome to the crazy world of MS. I, like you guys chased my symptoms..."

Thank you for responding, I thought I had come to full acceptance that I have MS until this particular neurologist threw the words of doubt at me after almost six years after diagnoses. Trying to get my head right again, I am pretty confident I have MS however, if truly not having bands is a huge red flag I my need to consider this however, I already had sooooooo much testing five years ago and it wasn’t fun and cost me lots of money out of pocket, that’s a road I don’t want to go down again. This is such a difficult disease to diagnose and to live with physically and emotionally I just feel like I am back at square 1 constantly wondering if I really have MS or something that looks like MS. I have researched every disease that mimics MS and I don’t fit those diseases so everything takes me back to MS 😫