← Return to Multiple Sclerosis (MS) - please introduce yourself

Discussion
Comment receiving replies
@rjader1266

I was diagnosed with RRMS in 2015, but started with Gastroparesis in 2014. Apparently, that's backwards! Since then, I've also been diagnosed with Trigeminal Neuralgia and Heart Failure. All but the heart failure is due to MS. All this at the young age of 49. My uncle and brother also have MS, but they have PPMS. They are in wheelchairs and I'm still mobile. Anyways, I've had Lemtrada, two rounds, hoping to slow the progression of MS. I tried Copaxone and Aubagio, but they did not help. I'm on a lot of other medications too. I'm a mom of 3 girls. One natural, special needs adult now, and we are raising 2 nieces, ages 8 and 10. I taught Special Education students for 21 years, but had to stop. So, I stay home and try to survive! I'm glad to have found another group for MS. I'm hoping to learn a lot here.

Jump to this post


Replies to "I was diagnosed with RRMS in 2015, but started with Gastroparesis in 2014. Apparently, that's backwards!..."

I am so sorry you now have heart failure that must be very scary for you, do they think the MS caused issues with your heart or could it be a DMD that impacted your heart?

Hello, @rjader1266 - you have a lot on your plate with the relapsing-remitting MS (RRMS), gastroparesis, trigeminal neuralgia and heart failure, not to mention being the mom of three girls.

In addition to discussion on MS, you might also be interested in these Connect discussions:

- on gastroparesis, a thread started in 2011 that continues up through present https://connect.mayoclinic.org/discussion/gastroparesis

- on heart failure and sodium https://connect.mayoclinic.org/discussion/salty-facts-heart-failure-and-sodium

- on trigeminal neuralgia https://connect.mayoclinic.org/discussion/trigeminal-neuralgia-2273cc

How has the alemtuzumab (Lemtrada) gone for you?