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Aortic Aneurysm Repair Success Stories

Aortic Aneurysms | Last Active: Dec 8, 2024 | Replies (31)

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@bitsygirl

Wow! Good thing you read your report. It's surprising and scary that no one had you scheduled for a followup with an expert.

I'm equally surprised that you were able to speak with a cardiologist within 24 hours. After being diagnosed with an aneurysm and a CAC score of close to 600 (98th percentile for my age and gender) from the same test, I wasn't able to see anyone for weeks. I was in the camp of "I did everything right and thought I was healthy." I used to joke with my spouse that I think I have health PTSD from reading that report.

This heart stuff moves at a snail's pace. The health system is so overloaded, and while it seems like an emergency to us, it's not really in most cases. I just wish there was capacity in the system for someone to spend a little time explaining things immediately after the diagnosis. Are we supposed to just not read the reports? Your case is a fantastic example of why that's not a good idea. Oof.

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I'm really thankful that my daughter's doctor basically forced me to get the echo done. Now I just have to wait for the referral to Mayo in Rochester to go through so I can see some specialists and really get the ball moving.