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Multiple Sclerosis (MS) - please introduce yourself

Brain & Nervous System | Last Active: Apr 9 9:54am | Replies (326)
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@bumble81

I had a spinal tap done as part of an MS panel a few months ago. The neurologist said my panel came back negative but I had elevated protein 58 MG/DL. Standard range is 14 to 45 MG/DL. And slightly elevated Albumin,CSF of 32 MG/DL. Standard range being 13.9 to 24.6 MG/DL.

I have no idea what this means and the doctor won't see me unless I get a full spine MRI and I do not have the money for it.

I have been having panic like episodes since last September. I had altered/loss of sensations on one side of my body and skull, pins and needles, violent vertigo. Out of control heart rate. I have also had short episodes of what seems to be loss of consciousness but not passing out. Just not totally awear of what was going on for a minute or so. I am often left with head pain after my episodes.

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Replies to "I had a spinal tap done as part of an MS panel a few months ago...."
Lisa Lucier | @lisalucier | Apr 5, 2019

Hi, @bumble81 - You'll notice I moved your post here to an existing discussion, "Multiple Sclerosis (MS) - please introduce yourself." If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.

Since you were talking about understanding some results from a multiple sclerosis panel, I thought you might like to meet some of the members here and they might have some information to share from their experiences (please note, however, that we are not medical professionals).

I'd like you to meet @stitchit57 @camper @lilgrizz @sauvee @hopeful33250. I'd also like to ask @brightwings @babette @karlene and @zebraclaire97 to join this conversation for their input. You indicated that you were trying to figure out what your panel results meant, as the doctor won't see you without an unaffordable full spine MRI, and that the neurologist said your panel came back negative but you had the following: elevated protein 58 MG/DL. Standard range is 14 to 45 MG/DL. And slightly elevated Albumin,CSF of 32 MG/DL. Standard range being 13.9 to 24.6 MG/DL.

This information from Mayo Clinic on MS may also be helpful https://www.mayoclinic.org/diseases-conditions/multiple-sclerosis/symptoms-causes/syc-20350269.

Is your primary care doctor willing to discuss your lab results with you further, @bumble81? Have you received any treatment thus far for the panic-like episodes?

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