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Aortic Aneurysm Repair Success Stories
Aortic Aneurysms | Last Active: Dec 8, 2024 | Replies (31)Comment receiving replies
This is exactly how I was when I was diagnosed, unfortunately my daughter at 4 days old had to have a balloon operation done. While we were in recovery with her, one of the doctors -who found out I have aortic stenosis and have not been following it - made me an appointment to get an echo done. They found the 5.1cm aneurysm but didn't have me scheduled for a follow up from a cardiologist. They uploaded the findings on their portal and I happened to look at the results. When I came across the severe aortic aneurysm on the report I immediately googled it and may have been the worst decision I have made - I had never felt that amount of stress enter my body... I wasn't able to speak to a cardiologist for 24 hours where she was able to relieve some stress and anxiety by talking with me. So I am willing to take any and all advice on how to continue to live life.
Replies to "This is exactly how I was when I was diagnosed, unfortunately my daughter at 4 days..."
Wow..I completely understand. Anyone would have anxiety. It would be hard not to be anxious. I am sorry you are going through this.
Talking helps tremendously.
It is a scary thing when drs dont tell you everything.
We have been going through some stuff with drs taking more time then they should with treatments.
For cancer. You really need to be on top of your own care. It is stressful
Do what works for your mental health. ❤️
At 5.1 cm I would talk to a Thoracic surgeon, mine was 5.2 when they found it while having leg fracture surgery, the surgeon saw me a few days after I left the hospital (different hospital), he recommended I had the aneurysm repaired as soon as I could walk some from my leg surgery, 3 months later I had it done, longest 3 months of my life, I wanted that thing gone. I was 54 in good physical health, out of the hospital in 5 days back to work in 3 weeks.
All measurements said 5.2 but the surgeon told me it was larger when he removed it.
I also have a bicuspid aortic valve (contributed to the aneurysm) and we talked about the possibility of replacing it, but the surgeon found it to be highly functional and told me my natural valve is better than any artificial valve he could have installed. I will need to have it replaced at some point maybe 10 years or so, but now it can be done through catheter.
Keep yourself healthy, stay active but not overexert, treat your body well, find the best surgeon you can find and a cardiologist who specializes in aneurysms, hopefully from the same team, it made a huge difference for me. 5 years later I am doing incredibly well, working out regularly, enjoying life with my family.
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Wow! Good thing you read your report. It's surprising and scary that no one had you scheduled for a followup with an expert.
I'm equally surprised that you were able to speak with a cardiologist within 24 hours. After being diagnosed with an aneurysm and a CAC score of close to 600 (98th percentile for my age and gender) from the same test, I wasn't able to see anyone for weeks. I was in the camp of "I did everything right and thought I was healthy." I used to joke with my spouse that I think I have health PTSD from reading that report.
This heart stuff moves at a snail's pace. The health system is so overloaded, and while it seems like an emergency to us, it's not really in most cases. I just wish there was capacity in the system for someone to spend a little time explaining things immediately after the diagnosis. Are we supposed to just not read the reports? Your case is a fantastic example of why that's not a good idea. Oof.