Osteoporosis medications and neuropathy

Mine started after a Flu shot in 2016 I've read where vaccines can confuse the immune system but who knows.

Me too been on both for a few years Gabapentin for nerve pain doesn't help much with the neuropathy mine it did improve after I started taking the metabolic prepared L-Folate to process B vitamins my levels of B6 and B12 were off the charts high because I have a gene that lacks the enzyme to process B6 and B12 so I had B vitamin toxicity which ironically has the same symptoms as low B12. Good luck with your journey.

Interested in what gene would that be? And what was the test that you had done to be diagnosed? Glad you found your problem and are able to address it.

I'm not on any osteoporosis medications but I do have neuropathy. Hopefully others with experience can share it with you. This research from a clinical study shows "28,600 people reported to have side effects when taking Actonel. Among them, 24 people (0.08%) have Peripheral neuropathy."
--- Actonel and Peripheral neuropathy - a phase IV clinical study of FDA data: https://www.ehealthme.com/ds/actonel/peripheral-neuropathy/

I wasn't aware that there is a way to tell if your neuropathy was caused by Covid. Do you mind sharing how they diagnosed you with Covid vaccine induced neuropathy?

Doctors ran a test for it he said i do have that gene I'd have to look it up but just do a google search for it

I also am curious how they diagnosed the Covid neuropathy?

I have neuropathy and was on Actonel many years before neuropathy reared its ugly head. I don't feel it's related. Recently, I had another NCV and EMG testing done. That doctor told me "There's usually 2 causes for neuropathy, diabetes and we don't know. I fall in the latter.

Welcome @texgal57, My neuropathy diagnosis is also idiopathic and my neurologist told me it was most likely hereditary. It sounds like the doctor wasn't really well versed in all of the different causes of neuropathy. Diabetes is a major cause of neuropathy but it's certainly not a case of diabetes or idiopathic (we don't know). Neuropathy Commons has a list of causes here if you want to do a little research - https://neuropathycommons.org/neuropathy/causes-neuropathy.

I'm not sure how they diagnose neuropathy from Covid but there have been some studies. Here's one of the studies:
-- Case-Control Study of Individuals With Small Fiber Neuropathy After COVID-19:
https://www.neurology.org/doi/full/10.1212/NXI.0000000000200244
If you want to see other medical research on possible causes, Google Scholar has a good list here - https://scholar.google.com/scholar?as_ylo=2024&q=neuropathy+caused+by+covid&hl=en&as_sdt=0,24.

Have you found a treatment that helps your neuropathy symptoms?

This was a neurologist I was referred to. I only saw him for the nerve testing.

I've tried Gabapentin, Lyrica, Amitriptyline, Duloxetine and currently I have a Spinal Cord Stimulator that I'm having removed. Nothing has helped.