Replies to I urge you not yo beat yourself up over delaying treatment due to your low PSA…

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Prostate Cancer | Last Active: Dec 5 3:55pm | Replies (102)

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@heavyphil

I urge you not yo beat yourself up over delaying treatment due to your low PSA score.
I met a man in my surgeon’s office who had Gleason 10 - aggressive type to boot. His Presurgical PSA was 1….that’s ONE.
Only reason he found it was because he had just watched his best friend die from PCa and was terrified. He literally forced his urologist to do a biopsy and the Dr was totally stunned by the results.
For some reason they are finding a variant of this disease that expresses very low PSA and you might be one of those men who have it. Probably too late but genetic testing might reveal the true nature of your particular cancer.
Best

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Replies to "I urge you not yo beat yourself up over delaying treatment due to your low PSA..."

northoftheborder | @northoftheborder | Dec 4 2:43pm

Yes, my oncologist (at the time) told me that about 1/20 cases of prostate cancer hit young and develop very fast. They're more common among men of African or Caribbean ancestry (which is why they need to start PSA screening younger, in their mid 40s), but that doesn't apply to me, and I still got hit with the aggressive type at age 56. It can develop so fast that you have a normal PSA result one year, then it's both developed and metastasised before the next annual screening.

That's what had happened to one of my roommates in hospital (an Afghanistan vet who'd already survived a lot of awful stuff in his life, including losing part of his squad to an IED).

There are some things you just can't plan for, or, as Monty Python once said, "Nobody expects the Spanish Inquisition!"

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