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@wiredallwrong

Hello everyone. My name is Jerold. I was diagnosed with Acinar cell carcinoma stage 4 incurable pancreatic cancer in 2022. I was on chemo every other week along with a pump that stayed connected for 2 days. I responded well to the chemo and after 2 years my surgeon suggested we go forward with the whipple procedure. That was performed late July and took nearly 11 hours. I am finally feeling like I’m breaking free from the fatigue. My appetite is still low because of cramping is dumping. I am currently on the highest dose of Zenpep. It has made a difference but it’s not perfect. It’s a long road but it beats the alternative. I was not recommended any more chemo and my ct scan looked good. Next even in 3 months. Fingers crossed. Also I have a wonderful team.

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Replies to "Hello everyone. My name is Jerold. I was diagnosed with Acinar cell carcinoma stage 4 incurable..."

Hi @wiredallwrong, you may wish to join this related discussion where members are talking about acinar cell carcinmoa.

- Anyone have Pancreatic Acinar Cell Carcinoma?
https://connect.mayoclinic.org/discussion/neuroendocrine-acinar/