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Multiple Sclerosis (MS) - please introduce yourself
Brain & Nervous System | Last Active: Apr 9 9:54am | Replies (326)Comment receiving replies
Today I am feeling much better just have a headache and earache besides the usual pains. This festival is something our church has and the name is just what we call ours because it is built on a prairie that we maintain. I am doing laundry because my wife starts school tomorrow and my daughter starts next week. I have a hard time during school season because before I got this PPMS I was a special education teacher. I really miss the classroom and the kids.
Replies to "Today I am feeling much better just have a headache and earache besides the usual pains...."
Have been busy getting my daughter ready for school(she started 8/23) and watching the eclipse with both of my daughters. Yesterday I went shopping at 2 stores with my daughters and when we came home my oldest daughter mowed the grass and I weeded the yards and the gardens. My youngest daughter got all the laundry ready to wash and loaded the dishwasher. Before I went outside I put in a load of laundry and when I came inside I started the dishwasher. I finished the laundry and folded it before bedtime. After dinner I went outside and filled all the bird feeders. My legs have been feeling a lot better since my 2nd infusion of Ocrevus. I still have the pain from my hips up along with all my ailments. I was wondering if anyone has experienced these symptoms I am having. One side of my face is numb and I can barely hear with that ear. When I chew something I can hear it in my ear and also in my head. My glands feel like they are swollen or hard. Has anyone ever had anything like this?
While we wait for others to respond to your post, have you asked your doctor if these are typical symptoms following your infusion of Ocrevus?
Teresa
Hi @disneyfan,
How are your side effects tonight? Same, better, worse?
I came across this article from MS News Today https://multiplesclerosisnewstoday.com/2017/04/03/points-multiple-sclerosis-patients-should-know-about-ocrevus-its-use/ It lists some of the possible side effects of Ocrevus as "skin itching, rash and reddening, difficulties breathing, and throat irritation or swelling, flushing, blood pressure drops, fever, fatigue, headache, dizziness, nausea, and a racing heartbeat." Some of these may be related to your feelings of swollen glands and numbness. Have you told your doctor about these symptoms you're having? I think you should.
I am going to check with my doctor and thanks for the info from the article. I am about the same, maybe a little less swelling. I have these symptoms every day, some days they get a little better but then it goes back to hurting like it always does. It never goes totally away.
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@disneyfan
I'm sure you do miss your job. I am glad to hear that you are feeling better.
Teresa