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Peripheral Neuropathy & Conversation Fatigue?

Neuropathy | Last Active: 1 day ago | Replies (35)

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@amkie

I so get what you are feeling Ray. People constantly ask me how I'm doing. I'm always thinking; You don't really want to know, or, where would I start, or, no one is able to understand any of what I'm going to say and of course how much time do we have? So I mostly give an amswer reflecting the general trend at the time unless they sought me out through a phone call or whatever
I am serious)y considering seeking some counseling to have an outlet for my feelings, anxieties and greif over the loss of my good health, sense of well being, and comfort. I do not want to burden others with that.

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Replies to "I so get what you are feeling Ray. People constantly ask me how I'm doing. I'm..."

I am going to be having my first pain psychology appointment (virtual) from a medical center tomorrow. I am hoping that helps too, not just from the perspective of having someone to share the anxiety resulting from PN but who may have ways to cope or reframe what is happening.

I've been known to theorize––Ray's armchair theory :-)––that friends will ask over and over about my 'condition' because they can't quite grasp the meaning of 'incurable,' something many of us, too, have had a tough time coming to accept. We seem to live in an age when there's an answer to every question. I'll sometimes reply to a friend who's asking, 'What will cure you?' the only way I can: 'There is no way.' I'll fully expect my friend to reach for his smartphone, saying, 'No way? That's crazy! Let's see what Wikipedia has to say … ' 🙂