@dloos this has "only" been 20 months for me and worsening symptoms what seems like daily. How you've managed for 3 years is beyond me. I am so frustrated as I read more and realize the newer symptoms are no doubt still long covid symptoms, I become more and more discouraged. I have, not til the end of Dec., an infectious disease doc appt.. Do I expect answers? No. Sympathy? A little would be nice. I have to make an appt. for hearing aids to I can at least have conversations. Two of my docs agreed I should be a med for nerve/muscular pain and I am and it's not doing anything.

And what's sad is that the docs we see now don't - at least in my case since my 27 year PCP retired just before COVID - know me from 'before' - my energy, my abilities, my joy. Yes, our lives have been stolen and none of this is normal.

THIS is the one place I feel safe saying anything. Friends and family get tired of hearing me and now, my having to ask them to repeat so I can hear.

To us - to one day of nice and the former normal.

I can certainly relate - we (fiance with LC)have been to so many doctors and tried so many things….. just resigned to the sad fact it may be the normal now - close to four years / have another “ 6 month checking “ with long COVID doctor tomorrow ( via zoom ) and I have no idea what we will even talk about ! Not looking forward to it -plus I contracted COVID before Thanksgiving and unwittingly passed it on to him - so this only put him back - I’m sorry for your frustration and dismay