1. < Cancer

Lynch syndrome

Posted by johnjustice42 @johnjustice42, Dec 2 9:06am

My son was recently diagnosed with colon cancer, after some testing we found out he has Lynch Syndrome. One doctor wanted to remove his whole colon, but on a second opinion this doctor just wanted to remove only about 12” off the right side. So of course he went with the second opinion and had it removed in September. She got enough for clear margins along with about 12 lymph nodes (none cancerous), after the pathology report we found out it was stage 2 and had only made it to the 3rd lining of the colon! Yeah!! No kemo or radiation is necessary! We are very blessed and God is good! So I guess my question is if anyone has run into this situation in the group? My son is only 26 and has a long life in front of him and if anyone has any suggestions especially from people that have dealt with this would be most helpful. Thanks,

John

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Sophie46 | @sophie46 | Dec 2 11:39am

I am sorry your son has had to go through this at such a young age. I too had colon cancer in 2007 and I suggest that your son avoids eating red meat and processed food. There is evidence to avoid these foods and my cancer has not returned, hopefully it won't.

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1 reply
johnjustice42 | @johnjustice42 | Dec 2 12:11pm
In reply to @sophie46 "I am sorry your son has had to go through this at such a young age...." + (show)
@sophie46

I am sorry your son has had to go through this at such a young age. I too had colon cancer in 2007 and I suggest that your son avoids eating red meat and processed food. There is evidence to avoid these foods and my cancer has not returned, hopefully it won't.

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Thank you so much, I will pass that along to him. And praying for both of you for cancer free lives!

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nrocpop | @nrocpop | Dec 3 3:30pm

Definitely follow doctor recommendations about follow-up colonoscopies. Don’t skip them. Also, take any symptoms in the digestive tract right to a gastroenterologist that know about Lynch syndrome. It has also popped up in the small intestine and stomach of my husband’s family members (and also uterus, bit that applies to female family members, of course). Lynch Syndrome can make cancers grow faster. My husband’s mother has lived to a nice old age with Lynch Syndrome, you just have to keep up on it.

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2 replies
nrocpop | @nrocpop | Dec 3 3:31pm
In reply to @nrocpop "Definitely follow doctor recommendations about follow-up colonoscopies. Don’t skip them. Also, take any symptoms in the..." + (show)
@nrocpop

Definitely follow doctor recommendations about follow-up colonoscopies. Don’t skip them. Also, take any symptoms in the digestive tract right to a gastroenterologist that know about Lynch syndrome. It has also popped up in the small intestine and stomach of my husband’s family members (and also uterus, bit that applies to female family members, of course). Lynch Syndrome can make cancers grow faster. My husband’s mother has lived to a nice old age with Lynch Syndrome, you just have to keep up on it.

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Sorry for the typos

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johnjustice42 | @johnjustice42 | Dec 4 11:11am
In reply to @nrocpop "Definitely follow doctor recommendations about follow-up colonoscopies. Don’t skip them. Also, take any symptoms in the..." + (show)
@nrocpop

Definitely follow doctor recommendations about follow-up colonoscopies. Don’t skip them. Also, take any symptoms in the digestive tract right to a gastroenterologist that know about Lynch syndrome. It has also popped up in the small intestine and stomach of my husband’s family members (and also uterus, bit that applies to female family members, of course). Lynch Syndrome can make cancers grow faster. My husband’s mother has lived to a nice old age with Lynch Syndrome, you just have to keep up on it.

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Thank you, my wife and I are getting tested to see if we were carriers. We will definitely make sure he follows up with any gastro issues!

Thanks again

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1 reply
nrocpop | @nrocpop | Dec 4 7:47pm
In reply to @johnjustice42 "Thank you, my wife and I are getting tested to see if we were carriers. We..." + (show)
@johnjustice42

Thank you, my wife and I are getting tested to see if we were carriers. We will definitely make sure he follows up with any gastro issues!

Thanks again

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I forgot to say that my husband's family has all been given EGD's as well as colonoscopies. Maybe that is a good idea too

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swidergal | @swidergal | 6 days ago

I too have Lynch Syndrome and have had endometrial, and colon cancer. I am now dealing with esophageal cancer so talk to your Dr about having an EGD to make sure your esophagus is clean. Good luck!

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