Definitely follow doctor recommendations about follow-up colonoscopies. Don’t skip them. Also, take any symptoms in the digestive tract right to a gastroenterologist that know about Lynch syndrome. It has also popped up in the small intestine and stomach of my husband’s family members (and also uterus, bit that applies to female family members, of course). Lynch Syndrome can make cancers grow faster. My husband’s mother has lived to a nice old age with Lynch Syndrome, you just have to keep up on it.