← Return to Began Tymlos 4 wks ago; flying solo till I see Endo in 3wks... advice?

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@gently

@annie208 Annie, this is such a great "unorthodox-push" story. We should all be so smoothlyaggressive.
You'll have the best idea (even without the prior-to-use bone markers) because the bone markers will indicate that you are losing more than gaining.
The clinical trials were done with endpoints at 18 months. A two year limit was placed on Tymlos because of caution that it could increase osteosarcoma. That limitation has been removed after years of data disproved the fear.
Some endocrinologist are extending the use of Tymlos to a third year.
The remaining concern is that either Tymlos or Forteo aren't as effective after 18 or 24 months, but there is little data given the prior restriction on it's use to 2 years.
You can temper the heart racing by taking a glass of water and something salty before the injection.
Parathyroid hormone vasodilates the blood vessels usually for the first four hours after use. With more space for the blood to flow through the heart beats faster to keep up with the volume to fluid ratio. Fluids will increase the volume and salt will constrict the vessels slowing the heartbeat.
Flying, yes. Well done.

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Replies to "@annie208 Annie, this is such a great "unorthodox-push" story. We should all be so smoothlyaggressive. You'll..."

Thank you for these kind and validating words.

I always say that on a good day I'm a self-directed, proactive patient who advocates for herself. (But on a bad day I admit I'm probably many providers' nightmare of a google-happy, chronically-researching patient!)

I went through a number of years of being uninsured before the Affordable Care Act and I would get labs from health fairs and just buy appointments from quick-care providers as needed. (So my old "self-management" habits die hard!)