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Arachnoiditis: Looking to talk with others
Spine Health | Last Active: 3 hours ago | Replies (404)Comment receiving replies
I recently after yrs of testing finally found by my primary care after asking of a diagnosis for a form , needless to say , she found a MRI done in April 2024 , flagged to Dr who never responded to me of this finding . I have went from cancerous tumor in 1986 which was followed by 29 radiation treatments then learning to walk again . I was 16 , when I was 27 I had a son , had good health but dealt with daily pain until 5-8 years ago after seeing numerous Dr's and finding nothing I traveled to Roanoake VA to carilion Clinic neurologist specialist who found I was going to find slow paralysis .
Also had team respond personally to me before a 3-4 hour trip not to come bc I wasn't a candidate for a spinal stimulator due to my naturally fused spine and Dr said it could not be possible .
I know as of 2 weeks I have every symptoms of Arachnoiditis and now have had 2 Dr's today say there is nothing I can do . I just want to have a quality of life I can tolerate only to hear you are just going to suffer. I just need help w bladder leakage pressure and also pain and not being able to set for long periods of time nor sleep more than a few hours.
Why are Dr's saying this knowing I know they could cath me , also they make higher dose of medication I recieve and say they can't help s person whom is asking to be able to have a social life again after years and I am not a suicide risk or risk to others.
Why if it was their self or a family member ( which I'd never wish on anyone) how they would feel.
They could help me up until paralysis happens and then hospice but I'm wanting to live.
Thank you. And I pray and bless you all. 🙏
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The allopathic docs: neurosurgeons, neurologists, orthopods, radiologists, pain clinic docs and the rest say there is nothing they can do because they can’t burn cut or poison the problem away. There is no cure but that doesn’t mean it can’t be put into at least partial remission.
But you will have to go to alternative medicine and you will have to work at it long and hard.
For the best modern options for pharmaceuticals, supplements and some kinds of alternative treatments, Dr. Forrest Tennant’s book “Living Well with Arachnoiditis” is a good place to start. You can get on Amazon, including a free option on Kindle Unlimited.
I got my own initial catastrophic case from 1991 into remission using a combination of, ChiGong and TaiChi (Bruce Kumar Frantzis’ “Southern Wu Style is particularly good but other short stance styles may work too), acupuncture, cranio-sacral work, trigger point massage and injections, dealing with my celiac disease (strictly no gluten), Alexander technique, and a program of walking. It took about 15 years and lots of trial and error to get back to a semi normal life and is still a work in progress. When I started I fully expected that I would not live to see the current millennium.
Definitely worth trying and there is so much more known and available now.
Best of luck to you.