← Return to Multiple Sclerosis (MS) - please introduce yourself

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Hi. I'm Jim, and I interact with several connect groups - chronic pain, peripheral neuropathy, mental health, and suicide. My youngest sister has had MS for around 20 years, and I have several cousins, all from the same branch of the family, who have MS. I learned around 5 years ago that I have idiopathic peripheral neuropathy, which began with numbness and pins and needles in my feet and ankles. By now, it has progressed to severe burning pain in my feet, and some numbness has begun in my hands. I think my father and all 5 of my siblings have had neuropathy.

Along with neuropathy, I've accumulated several other issues - memory problems, balance, dysphagia, dizziness, double vision, ED, fatigue, a slowing down of my thinking, and other things. I also have major depressive disorder, PTSD, anxiety disorder, and suicidal ideation.

Putting all of this together, I began wondering if I had MS, so I talked with my doctor about it a week ago. He referred me to the neurologist I'd been seeing awhile back, and today I had an MRI of my brain and spine. I also met with a speech therapist this morning, to figure out how to deal with the swallowing problems.

I don't know if the symptoms I'm experiencing are just random, unrelated issues, or if they're indicators of MS. I don't know if I really want to know.


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Replies to "Hi. I'm Jim, and I interact with several connect groups - chronic pain, peripheral neuropathy, mental..."

@jimhd I have been wondering about all of your upcoming tests, Jim. Keep in touch and let us know how you are doing. Teresa


Tuesday, my 2nd cataract surgery went well. I'm looking forward to getting new glasses and seeing the improvement. Yesterday, I had my first appointment with the speech therapist, and did some swallowing tests so she could see what's going on from an external view. Next week I'm having a barium swallow x-ray. While the barium is present, I'll swallow various things to see, for one thing, if I'm at risk for aspirating. After that appointment, I had a follow-up blood draw, and found that I'm still bleeding internally somewhere. Then, I had an MRI of my brain and spine as part of an MS assessment. I didn't enjoy the MRI at all.

More to come next week. I can't have the spinal cord stimulator implanted until we figure out where I'm bleeding.