1. < Prostate Cancer

First Appointment at Mayo Clinic in Arizona

Posted by themurfs @themurfs, Mar 3 5:28pm

My husband called to schedule an appointment for a second opinion for his prostate cancer treatment. We sent in all his pathology and scan results. When MAYO called back my husband was given an appointment with a Urologist at Mayo. Can anyone help us with what we can expect for this first appointment? We had really hoped we would be scheduled with a Radiology Oncologist so we could discuss treatment options. It seems like we are having to start back at the beginning with having to see a urologist. We live in Oregon and will be traveling out of town, obviously, so we want to make certain booking flights, and a hotel room will be worth this first appointment. We would really like some feed back on this as we navigate what to do. Thank you!

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proftom2 | @proftom2 | Aug 31 8:23am
In reply to @koji480 "I have been a cancer patient at OHSU for five years. I wish that I could..." + (show)
@koji480

I have been a cancer patient at OHSU for five years. I wish that I could report being fully satisfied but I have found the care to be uneven. I believe it depends in part on which oncologist you get. One thing I have learned is that you can't depend on credentials/education, or published studies to find a good oncologist.
I will be, reluctantly, transferring my care next month elsewhere.

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Got-it. Agreed. My Advanced Prostate Cancer journey taught me there is no PCa Yellow Brick Road. But after four tries (different oncologist at different hospitals/Institutes) I did find Oz. And he, OHSU Palliative Oncology Psychologist helps me find the Courage, Heart, and Thinking within myself to deal with my PCa the best I can. Epically helpful.

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2 replies
jcf58 | @jcf58 | Aug 31 8:29am

The cool thing about Mayo is they work as a team on most issues. Your urologist will likely discuss your case with a variety of their colleagues and develop a plan specifically for you and your situation. My first visit was with a Radiation oncologist but he had already discussed my situation with a team. He was my contact as I was accepted in a clinical trial he was leading on Tulsa Pro ablation.
I Have had other family members treated at Mayo for other issues and they always impress.

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2 replies
koji480 | @koji480 | Aug 31 10:52am
In reply to @proftom2 "Got-it. Agreed. My Advanced Prostate Cancer journey taught me there is no PCa Yellow Brick Road...." + (show)
@proftom2

Got-it. Agreed. My Advanced Prostate Cancer journey taught me there is no PCa Yellow Brick Road. But after four tries (different oncologist at different hospitals/Institutes) I did find Oz. And he, OHSU Palliative Oncology Psychologist helps me find the Courage, Heart, and Thinking within myself to deal with my PCa the best I can. Epically helpful.

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Totally agree. But when you have a physician that repeatedly fails in follow up, you know it's time to move on.

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tuckerp | @tuckerp | Aug 31 11:03am
In reply to @jcf58 "The cool thing about Mayo is they work as a team on most issues. Your urologist..." + (show)
@jcf58

The cool thing about Mayo is they work as a team on most issues. Your urologist will likely discuss your case with a variety of their colleagues and develop a plan specifically for you and your situation. My first visit was with a Radiation oncologist but he had already discussed my situation with a team. He was my contact as I was accepted in a clinical trial he was leading on Tulsa Pro ablation.
I Have had other family members treated at Mayo for other issues and they always impress.

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I have switched all my care to Mayo Phoenix. I switched when they started taking Medicare. I would not want to go anywhere else. I would say over the last 6 years it has become more difficult to get an appointment. Although I think that applies to all the medical field. I have been trying to get a gastrologist appointment for the last year and no luck. They have a family practice that has been booked the last 6 years.

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1 reply
westernflyer | @westernflyer | Aug 31 2:35pm
In reply to @jcf58 "The cool thing about Mayo is they work as a team on most issues. Your urologist..." + (show)
@jcf58

The cool thing about Mayo is they work as a team on most issues. Your urologist will likely discuss your case with a variety of their colleagues and develop a plan specifically for you and your situation. My first visit was with a Radiation oncologist but he had already discussed my situation with a team. He was my contact as I was accepted in a clinical trial he was leading on Tulsa Pro ablation.
I Have had other family members treated at Mayo for other issues and they always impress.

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Some time ago on Frontline, there was a historical view of Dr. Mayo who founded his medical clinic, but morevover his two sons who went on the grow the Mayo into a world-class medical treatment facility.

Mayo doctors don't work as individuals but as a team as mentioned above. The consortium concept brings ideas, concepts, and experience together to solve the problem.

Marriot has a hotel within walking distance of the Jacksonville Mayo campus. If you have the insurance and resources, there should be no other choice. RH/Leesburg, Fl

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dandl48 Dave | @dandl48 | Sep 1 1:12pm
In reply to @tuckerp "I have switched all my care to Mayo Phoenix. I switched when they started taking Medicare...." + (show)
@tuckerp

I have switched all my care to Mayo Phoenix. I switched when they started taking Medicare. I would not want to go anywhere else. I would say over the last 6 years it has become more difficult to get an appointment. Although I think that applies to all the medical field. I have been trying to get a gastrologist appointment for the last year and no luck. They have a family practice that has been booked the last 6 years.

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You might ask your Dr that you are seeing to help you get an appointment with the Gastro dept. I asked my MD in Rochester who was retiring to help me to get into Phoenix for my Esophagus problems and he did. 🙂

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Beachcomber20 | @itsaquarter23 | Nov 30 2:08pm
In reply to @proftom2 "Got-it. Agreed. My Advanced Prostate Cancer journey taught me there is no PCa Yellow Brick Road...." + (show)
@proftom2

Got-it. Agreed. My Advanced Prostate Cancer journey taught me there is no PCa Yellow Brick Road. But after four tries (different oncologist at different hospitals/Institutes) I did find Oz. And he, OHSU Palliative Oncology Psychologist helps me find the Courage, Heart, and Thinking within myself to deal with my PCa the best I can. Epically helpful.

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Could you share the name of the OHSU psychologist—and any other Portland-based prostate cancer doctors you've found helpful? Thanks!

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1 reply
proftom2 | @proftom2 | Dec 1 10:03am
In reply to @itsaquarter23 "Could you share the name of the OHSU psychologist—and any other Portland-based prostate cancer doctors you've..." + (show)
@itsaquarter23

Could you share the name of the OHSU psychologist—and any other Portland-based prostate cancer doctors you've found helpful? Thanks!

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Yes, happy to: Jason Allen Webb, M.D., DFAPA, FAAHPM, FACP psychologist at OHSU. Also, discovered the OHSU Knight Cancer Institute Navigator System/people are epically helpful.

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Beachcomber20 | @itsaquarter23 | Dec 2 4:42pm
In reply to @proftom2 "My OHSU Oncologist is Dr. Sokolova. For best results use the Physician Advice and Referral Service..." + (show)
@proftom2

My OHSU Oncologist is Dr. Sokolova. For best results use the Physician Advice and Referral Service at OHSU.

OHSU is a NCI-Designated Cancer Center. There are 72 NCI-designated cancer centers around the country, funded by NCI “to deliver cutting-edge cancer treatments to patients.”

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Are there specific OHSU prostate cancer doctors that you'd recommend? For instance, are you getting good care from Sokolova?

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proftom2 | @proftom2 | Dec 3 12:26pm

I find Dr. Sokolova epically helpful and highly recommend her. She is my cancer team leader. OHSU is part of my advanced prostate cancer treatment strategy. Why? OHSU is a NCI Designated Comprehensive Cancer Center, which means they strive to be leading edge in research, education, and treatment. Another part of my prostate cancer strategy is to have a local oncologist. Why? I live 80+ mile from OHSU, so I have a second, local, oncologist 2 miles from home. He works at the local hospital, is a great communicator, easy to talk with, helpful, caring, knowledgeable and knows the local cancer resources well, plus he refers to OHSU when needed. Another part of my strategy is education, meaning I keep current the best I can on advances in prostate treatment. Hopefully this helps.

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