← Return to Pheochromocytoma: Anyone being treated for an adrenal mass?

Discussion
Comment receiving replies
@wilhelm

I have posted several times on another thread, for Paragangliomas, and it was suggested to look at this one also. I have a paraganglioma on the left side, which is going to be removed on Dec. 10th by Dr. Carling in Tampa. I wanted to point out the different 24 hr urine tests I had done early this year. When it was first suggested to check my hormone levels (by my GP), all they did was tell me to do it. Normal levels. Let me back up, Last year I happened to mention to GP that for years I would wake up in the middle of the night with my heart pounding, anxious, sometimes sweating etc.. Led to nothing until I mentioned it felt like a mild adrenalin attack. So, next step was to see an endo doc, and when I mentioned to him the normal 24 hr test results, he had me do it a little different. I was not to start the test until I had one of these nighttime episodes, when I did, get up and urinate normal, THEN start the 24 hr test. The results were totally different, epinephrine and metanephrine were 4x the normal maximums. All that just to suggest discussing this with your doc before starting a 24 hr urine test.

Jump to this post


Replies to "I have posted several times on another thread, for Paragangliomas, and it was suggested to look..."

They never told me to do anything special with timing the 24 hr urine tests. I had some elevated results just doing it after first morning urine:

Metanephrine Total, 24 hr 5/19/2021 650 mcg 164 - 588 mcg/24hr Normotensive
Metanephrine, 24 hr 5/19/2021 129 mcg 30 - 180 mcg/24hr Normotensive
Normetanephrine Free Plasma 6/7/2021 .37 nmol < .90 nmol
Normetanephrine, 24 hr 5/19/2021 521 mcg 128 - 484 mcg/24hr Normotensive