← Return to Multiple Sclerosis (MS) - please introduce yourself

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@tashanharrell

So I was diagnosed in dec of last year. I'm on Abagio, it was so hard to even get me on it since I was admitted to the er and this is where they told me. It was horrible. the dr came in told me you have ms and it was not cureable ,then got a call and left .I was in the room alone for 30 min before anyone even came to check on me.O i was on high dose pain killers for the head pain.. So I was freaking out bad. My husband and kids came in saw me in mthat moment. then admitted for 5 days of blood work, cat scan, 2 mri's ,spinal tap. they kinda told me about ms but not really clear on it. It was hard to get in to a dr. first one that is supposed to be the best here in ATX, was kinda trying to push me into a trial. he still didn't really tell me anything. Next dr has been hard to get a hold of.I have all these weird pains and weird stuff going on .not sure how normal for ms it is or if I need to go get steroids again. I have only met people to talk to yesterday that has it. All anyones really said don't feel sorry for your self you will have pain and no cure. so frustrating.So they do think I have had this for a long time but just resently found out.I just need to get all this out and have people who understand and be able to say more then move on. its still new. sad and angry and confused..okay thank you for reading my manic rant.

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Replies to "So I was diagnosed in dec of last year. I'm on Abagio, it was so hard..."

Hello I understand your pain I was diagnosed in September and it is scary and confusing, but God got the last say so! I am taking an infusion treatment because I have the JVC that can cause PLM that is a brain virus that can kill u in a year times with all the different medications, the only medication that can stop the PLM is Rituxan may prove to be a highly effective treatment for the most common form of multiple sclerosis, if results from a small, phase II trial are confirmed. In the study, sponsored by the drug's manufacturers, patients with relapsing-remitting MS who were treated with a single course of Rituxan showed rapid reductions in the inflammatory brain lesions that are a hallmark of the disease. And after nearly a year of follow-up, half as many patients treated with the drug had experienced clinically significant relapses as patients in the placebo arm of the study. I hope this been helpful maybe you can ask your doctor about this medication.

@ydawson Thanks for adding your story about MS. Could you please explain what you mean by "I have the JVC that can cause PLM"? Teresa

@tashanharrell So sorry to hear that you have not had some good explanations and support. Teresa