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← Return to Evenity worked for me: Why I chose medication for osteoporosis
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Evenity worked for me: Why I chose medication for osteoporosis
Osteoporosis & Bone Health | Last Active: Dec 7 11:58am | Replies (39)Comment receiving replies
@monkhhi Perhaps you are already aware of the potential dangers involved in stopping Prolia. If so you can stop reading.
If not then you need to know that there are no guaranteed safe ways to stop Prolia. If you stop without another med to stop the "post Prolia bone loss" you will lose bone very rapidly. You may even lose bone past where you were before you started the Prolia.
More importantly you will also risk the special "post Prolia multiple spinal fractures" disaster. I've seen reports of anywhere from 2-10 spinal fractures when people stopped Prolia without starting another med right away.
Even if you take the strongest bisphosphonate (Reclast) you still may lose a lot of bone and have multiple fractures. Sometimes even two doses of Reclast won't stop the bone loss. My doctor estimates that up to 20% have trouble with post prolia bone loss even though they take Reclast right away.
No, this doesn't happen to everyone. Maybe it's not happening to very many people? I don't know if anyone is tracking this statistically?
It is easy to find quite a number of people reporting this happened to them on the various osteoporosis forums. It is acknowledged by researchers and knowledgeable doctors but somehow some doctors forget to mention these little details. Just saying.
Replies to "@monkhhi Perhaps you are already aware of the potential dangers involved in stopping Prolia. If so..."
I will also say beware of Prolia, I am one of the multiple spinal fractures women (3 in 5 months this year) after having stopped Prolia and gone directly onto a biphosphenate. I am in Tymlos now to try to get some bone recovery.
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I will add to what @awfultruth wrote by saying it seems people come on here wanting to switch to something after Prolia but there is no good option other than Reclast. This is what someone called the "Prolia trap."
Ben Leder MD has a YouTube video that shows the potent effectiveness of Prolia which is positive. However, he also discusses rebound and say he doesn't use it as much anymore. Too bad- when Prolia was introduced it was the new miracle drug but they later discovered rebound. (Just like they discovered atypical femur fracture and jaw necrosis on anti-resorptive).
When I am 80 I would consider Prolia though I have a cranky immune system that might not react well to it!