Meningioma: Anyone else? I'm frightened

Posted by pixie49247 @pixie49247, May 12, 2023

I just found out I have a Meningioma tumor from a MRI I had for something else. Doctor said they are almost always benign and am going to get an appointment with a neurologist. Anyone else have one of these. I’m getting very frightened now.

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@elisabeth007

i would feel like slapping a surgeon who underplayed the risk factor of age and who essentially made a joke of it. Surgery is high revenue generating business and i want and have a serious surgeon.

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I didn't consider my surgeon's remark that I was "72 years young" as a joke when I discussed, with him, having my aneurysm coiled. Not in the least. Perhaps because I didn't regurgitate the entire conversation one could interpret it that way. My neurosurgeon knows my health history, knows that I did quite well after a craniotomy at age 71 last year, knows that I am an active septuagenarian. He answered all of my questions, of which the age issue was only one, concisely and professionally. I feel that I am in good hands.

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@kob

Week ago my CT scans ( done because of sinuses issues ) were revealed and 2 cm big meningioma, detected on my right frontal lobe. I’m waiting for my MRI appointment. It is the most terrifying information that I am not sure how it handled.

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I had the same unwanted news. I had a bassline MRI to see if, after looking at so many other possible causes, my frequent lightheadedness had a neural basis. No problem there (and my lightheadedness has since stopped) BUT there was a meningioma the size of a kidney bean. It's not causing any problems now, and I am old so it's on watch status. I felt lucky, as you, to have discovered it early by accident. I have 2 friends who did not discover this problem until they had very serious symptoms. They were the size of fists! They are almost always benign and slow growing. So please worry less.

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@elisabeth007

my doctors have told me many people never get symptons and never get much growth ….and can stay on wait and watch for ever.

My doctors and i don’t believe in non-essential surgery

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Unbelievable to me what a month has meant since my message above of exactly one month ago…..i am now scheduled for surgery this month and am experiencing symptoms with “sudden onset” (after almost 7 years of watch and wait)

On a positive note, i feel very psychologically prepared for surgery—i sincerely hope after a period of recuperation, the surgery will improve my quality of life.

I was offered surgery for the first time six months ago and couldn’t imagine i was so close to needing it…..and two excellent neuro-surgeons thought i could wait another six months and have another MRI “and nothing would happen” I don’t fault them….the tumor suddenly grew down into my brain after over six years of being on the surface. in may 2024, it was a “convexity meningioma”. It’s now a “parasaggital meningioma and feels very different. For me, it’s “easier” to accept the need for surgery, now that i’m “suffering”. i absolutely was not ready to have surgery six months ago….i am now…there are so many logistics to resolve before surgery and i pray for the ability and resilience to complete everything i must get done.

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@triciax

I had the same unwanted news. I had a bassline MRI to see if, after looking at so many other possible causes, my frequent lightheadedness had a neural basis. No problem there (and my lightheadedness has since stopped) BUT there was a meningioma the size of a kidney bean. It's not causing any problems now, and I am old so it's on watch status. I felt lucky, as you, to have discovered it early by accident. I have 2 friends who did not discover this problem until they had very serious symptoms. They were the size of fists! They are almost always benign and slow growing. So please worry less.

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Thank you for sharing this information. I have scheduled MRI on 5 th.
Hopefully it should provide more accurate results.

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