← Return to Anyone on VYVGART Hytrulo, a new treatment for CIDP?

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@77smith77

I have been on Vyvgart for over a year now with great results. Not Hytrulo, but the IV route. Myasthenia gravis was treated with Pyridostigmine, Rituxin, IVIG, Solaris, Pulse dose Steroids and Plasma Exchange with little result. 9 Hospitalizations, 5 in ICU at UofPenn and Philadelphia VA. Lost muscle mass and gained 30 lbs. I was looking into Hospice. I could not walk very far or hold on to things. I started Vyvgart and walked 9000 steps 3 days later. 36 sessions of cardiopulmonary rehab, diet weight loss back to 154 lbs, no hospitalizations. I am 79. Drove one of my cars in time trials this summer after not being able to drive at all for years. Just built a new deck and gazebo at my home. On the other hand another vet I talked to at the VA infusion is having no benefit from it. I was discourged from trying it because of side effects, but I had little to lose. Vyvgart prevents recycling of old antibodies rather than prevention of making new ones. wish you well on your journey. Never give up.

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Replies to "I have been on Vyvgart for over a year now with great results. Not Hytrulo, but..."

Thank you for your reply. Have you had any side effects like respiratory
or urinary tract infections? If so how frequent? How hard to treat?