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Anyone on VYVGART Hytrulo, a new treatment for CIDP?
Autoimmune Diseases | Last Active: 4 days ago | Replies (28)Comment receiving replies
iam starting the Vyvgart next week ??? I'll let you know how it works for the CIDP i got from the covid vaccine, any one else?
Steriods did not help The IVIG did some but then after about 40 infusions I started to have other problems..Then 4 infusions of rituxain it helped some but now I am tired all the time!
Replies to "iam starting the Vyvgart next week ??? I'll let you know how it works for the..."
I am starting Vyvgart as well. CIDP started in me a few months after Covid vaccine. Been on IVIG for 8 months and it seems to help a little but I have NF155 antibodies that generally don't respond well to IVIG.
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Yes, let us know how it goes. It is such a frustrating illness. There are
so many fluctuations in how I feel, how I can move, how bad the numbness
and paresthesia is, how tired my muscles are, or how full of energy I feel
and how somtimes if I don't move, absolutely nothing hurts. This reverses
at will. Weeks then months slip by and all the while things are trending
slowly in a positive direction for the past 18 months. Still a mystery to
me.