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@mnewland99

@mrajat Agreed. Lots of good opinions here, mostly consistent; you may not even get consistent opinions from drs.
MSK is very good. I live in California, but if I could do it all over again I would consider Mayo Rochester; but you have to go with what is reasonable as far as distance in regards to your time family and/or work responsibilities. Two important points have been brought up so far that I see: 1) the location of tumor and if there is any vein or artery involvement (only very advanced facilities deal with the latter), 2) what are your mutations (were they able to test them following biopsy?); some mutations are more aggressive than others (mine are kras12D and TP53 and maybe ATM). My mutations were aggressive and I saw how quickly my father passed with his pancreatic cancer so I knew I wanted surgery right away. I was told it would take a minute to get everything scheduled so I decided to leave voicemails on scheduler’s phones (BTW it was very difficult to speak with them in person) saying I had 2 college age kids (yours are much younger and I really sympathize with that) that I wanted to be around for and that I saw my father pass with it very quickly so I wanted to get in to see them ASAP. Also, make sure you are working with a surgeon who has done many surgeries be yours pancreatic or abdominal. Mine had only done 30 in 2 years and though he was good as far as taking most of my pancreas out and testing as many surrounding lymph nodes as he could, I did have complications that weren’t good and took me out for my post surgery chemo longer than it should have. My surgery was in 2022 and in the mid and tail sections of the pancreas. You are asking the right questions and how smart of you to come to this forum. I wish you a great journey and successful journey.

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Replies to "@mrajat Agreed. Lots of good opinions here, mostly consistent; you may not even get consistent opinions..."

That's helpful. Thanks for sharing!
Could they still have tested the genetic mutation if the biopsy came back inconclusive?
My surgeon at MSK said he has done 2,000 whipple procedures during his 20-year career--so about 100 a year.
Sorry to hear your surgery had some complications, but glad you are doing Ok now 2 years in. Good luck!