← Return to Lichen sclerosis--Has anyone else been told they're in remission?

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@minnesota10

Yes it can go into remission. I found out it came back when I started going into menopause.
I developed it in my early 20s at that time. The doctors didn’t know what it was. Then I went into remission after I had my children.
When it came back, then the doctors tried to figure out what it was. It took him a few years to come up with a name.
This is very painful and I sure wish they could find a cure for it once and for all.

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Replies to "Yes it can go into remission. I found out it came back when I started going..."

@minnesota10, even though my LS is in remission, I still have the burning that comes with the damaged nerves. I do use Clobetasol twice a week, all the time. I use a compounded cream to numb the area, but that does not always work. I also take Amitriptyline, 30 mg every night. I had formerly taken 25 mg and now take 3, 10 mg every night since the pill does not come in 30 mg strength. Yes, it is all very painful and I do not think there will be a cure in my lifetime. At least you know what you have. It took 4 gyns to find one who knew about LS. With all good wishes, @joybringer1.

Amen

This condition is lifelong I was told by my gynaecologist. I suffered for two years because my family doctor did not know what is was. He was giving me antibiotics. The gynaecologist (a woman) thank heaven knew what it was right away. I also use clobetasol a small amount twice a week. The first day I used it what a relief. Mine has not gone into remission be thankfully there is a treatment!
All the best!