It’s very difficult to get diagnosed With ankle losing spondylitis apparently. If any of your care team does figure it out it’s like a miracle.
No one wants this diagnosis but at least if found early it can be treated to slow down the progression of the disease. Otherwise found later in life it can be excruciating as the disease tries to fuse your spine.
After all the years of suffering with neck, knotted shoulder pain and low back pain, assuming it was due to osteoporosis. I developed psoriasis, actually the dermatologist said dermatitis. Later a new dermatologist figured out it wasn’t dermatitis but psoriasis. I didn’t know there was a difference but there is.
Due to my continued pain she was pretty sure I had psoriatic arthritis and tested for the HLA B27 jene which was positive. She stated treatment with Otezla and referred me to rheumatology. It took a year to get in but once seen, they do several tests to determine the disease.
Labs, X-rays and MRI of your SI joints.
The dr said psoriatic arthritis shows up as one side of hip joints being inflamed but if both sides are inflamed and edema, it’s Ankylosing spondylitis.
Those are the steps to diagnosis. Hopefully you find out sooner than later as l have a lot of progression and have multiple sites as it attacks not just the spine but the ligaments and joints along the spine.
Which is why l had terrible pain in between my shoulders.
Thoracic scoliosis as well, blah blah blah, sick of all of it.
I am seeing a chiropractor who does heat and EMF ( like a strong tens machine) and a tool that sounds like a vibrating drill on my joints along my spine, which really helps. I use a small vibrating heat pad that is cordless 😍 love it. I use soft pillows and seat pads, a foot stool to try to keep from crossing my legs 😥l take meloxicam 15 mg every day as l do not want to get addicted to oxycodone or any other opioid. Currently waiting for Taltz to be approved by insurance after being on Cosentyx for a year with out any benefit other than some help for the psoriasis.

Anyone on Taltz for AS??? What’s your experience with Taltz??

Thanks for any input or feedback, l do appreciate it in advance 🫥😶‍🌫️