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DiscussionRecent diagnosis: Have questions about treatment options?
Pancreatic Cancer | Last Active: 19 hours ago | Replies (57)Comment receiving replies
Replies to "This sounds so similar to me--but I'm an 84 year old woman, but like you, very..."
@carrie40 I am 80 years old and my doctor told me I probably have pancreatic cancer. He determined this from the results of CT and MRI, a positive ANA titer and elevated CA199. He scheduled me for a EUS to be done on November 27. I called Mayo Clinic and was given a video/phone appointment on November 20. The interview was with nurse Ashley from Pancreas Clinic Pre-Visit. Ashley told me that Mayo would prefer to do the EUS there rather than at university of Chicago. She also said that it was very expensive and my insurance would not pay for it twice so I canceled my EUS appointment and agreed to have it done at Mayo. Ashley told me it would be one to two weeks before I heard when my onsite appointment at Mayo was scheduled. I did contact Mayo a few times to find out about my pancreatic appointment. I was told each time that test are ordered but not scheduled. Today I learned that I am on a waitlist of 2 to 3 months. I was shocked. I wish someone would’ve told me this sooner. I feel like precious time has been wasted. Pancreatic cancer doesn’t waste time However you have given me. Hope when I read your message I thought wow I can do it too. I just won’t be doing it at Mayo. I guess thank you God bless you.
Thanks for sharing, Carrie! It's very uplifting to hear your experience. I'm going to look into radiation options but so far all my doctors have said chemo--whether before or after the surgery or both. Did you have to go against your oncologist's recommendation to do radiation only or did they support your wishes?