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Anyone else with Churg-Strauss or EPGA?

Autoimmune Diseases | Last Active: Nov 30, 2024 | Replies (44)
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@erinman57

Hi all - I’m writing on behalf of my dad who was diagnosed with a severe case of EGPA which has made him completely blind, severe muscle pain and weakness, weight loss, neuropathy in hands and skin rashes. His doctor prescribed rituximab infusions as he tapers from high dose steroids and insurance has been denying it for the last month, and now his symptoms are worsening again. Has anyone had trouble getting their treatments approved or any advice on how to navigate that? He also started Nucala this month. You are all amazing and wishing you all the best in your healing from this.

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Replies to "Hi all - I’m writing on behalf of my dad who was diagnosed with a severe..."
Laurie, Volunteer Mentor | @roch | Nov 30, 2024

@erinman57
Welcome to Connect, hopefully other members will be able to give you some advice on dealing insurance denials. It is very frustrating when a provider has a treatment plan and the insurance company denies it.

All companies have an appeal process, if you have not done so, start an appeal. Sometimes you will need to get the provider involved to provide information that it is medically necessary.

Some states have assistance with Health Insurance issues. They may not be able to help with all insurance company, but worth looking at. In MN, it is under the Department of Commerce. I suggest doing a google search similar to "mn medical insurance complaints" substituting MN for your state.

It might help if you're willing to share the type of insurance your dad has, Medicare, Medicare Advantage, veterans, private insurance ?

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