@amkie, I moved your question to this related discussion so you can connect with @kgitti
- VYVGART Hytrulo, a new treatment for CIDP? https://connect.mayoclinic.org/discussion/vyvgart-hytrulo-a-new-treatment-for-cidp/

@amkie, has Vyvgart Hytrulo been recommended for you?

Yes! After one week I have started to feel new and better sensations and more energy!
You have to wait 6 months after your last Rutaxan to wash out your system of it. Rutuxan was not good to me at all and the six month wait was awful!
Next shot is monday I'll keep you all posted.

My Neurologist said i have CIDP tried ivig only bad rash over whole body. Has anyone tried
Vyvgart Hytrulo for CIDP intersested in patient results.

I took it for 4 months last year but then I got shingles and my neurologist believes I got it from VYVGART. I was off of it for about 5 months until the shingles resolved. I am back on it now for a month. I have been back on it now for a month. It is very difficult for me to determine whether or not it helps, as changes are slow. I have Lewis Sumner Syndrone, which is a derivitive of CIDP.

I have been on it since May, 2025. At first, it was a HUGE improvement. Unfortunately, the longer I've been on it the worse my symptoms have gotten. Some of my symptoms are getting back to where they were before I started IVIG (I was on that prior to the Vyvgart). Going to have to talk to my neuro pretty soon about this.