Hi,
I don't accept what is wrong with me, I can't change it but if I accept it then the urge to fight for something better is gone. Because IBS is a catch all term we are mostly unique in our particular symptoms. By definition a cure is unlikely without knowing the disease.
I have struggled for what feels like a lifetime with IBS and have had every symptom and variation of symptoms from not being able to eat anything to some halfway decent days. My worst period was having the stomach so expanded there was no more give in the skin, unable to sit, having to lay down through not being able to bend at the waist. Abdominal pain off the scale at times, mostly uncomfortable all the time. For me going into SIBO bouts is now the worst affect I get. As the digestive system is complete out of control I'm limited in the amount of food/ fluid I can take per day. Go over it and into SIBO yet again. I have now been living on wholewheat bread and cups of tea for 14 months. Limited to a max of 6 slices per day and 7 cups of tea, usually 4 slices with a slice of shaved ham and 6 cups of tea. I will have a small amount of vegitables once a week with grilled chicken or fish. I'm constantly hungery and have to remind myself how difficult life gets eating more than my limit. My Gastrologist agrees with me if I can tolerate it, eat it, which is why the bread. It has little effect on my stomach in moderation. I have been through the Fodmap several times without success. I stick to what I prepare and never eat anything someone else has prepared for fear of eating something that I react to. I am salt free, sugar free, no herbs or spices. The worst part of it all is the simple fixes I'm constantly given that are well ment but useless to me. In 13 years I believe I have tried it all. Had every proceedure going and still nothing to show for it all. Now with Autonomic polyneuropathy controlling the digestive system and the new diagnosis of CSVD there is nothing but just managing each day as best I can. There isn't going to be a fix and certainly few options for treatment, just fumble my way through each day I manage to wake up.
Sadly I can only empathise with you, I can't offer a solution. Surprisingly I do best and come alive when I'm going through a starvation period, no food just cups of tea to keep the kidneys flushed and happy. I'm CKD, T2 diabetic and stumped for diet with each health issue compromising the other health issues.
Cheers