1. < Neuropathy

Osteoporosis medications and neuropathy

Posted by detc @detc, Feb 19 7:34am

Has anyone developed neuropathy after taking Actonel or other osteoporosis medications? I was diagnosed with Covid vaccine induced neuropathy and I’m wondering if my robust, over active immune system may respond in the same way to osteoporosis medications.

Interested in more discussions like this? Go to the Neuropathy Support Group.

Mentor
John, Volunteer Mentor | @johnbishop | Nov 29 6:50am
In reply to @texgal57 "I also am curious how they diagnosed the Covid neuropathy? I have neuropathy and was on..." + (show)
@texgal57

I also am curious how they diagnosed the Covid neuropathy?

I have neuropathy and was on Actonel many years before neuropathy reared its ugly head. I don't feel it's related. Recently, I had another NCV and EMG testing done. That doctor told me "There's usually 2 causes for neuropathy, diabetes and we don't know. I fall in the latter.

Jump to this post

Welcome @texgal57, My neuropathy diagnosis is also idiopathic and my neurologist told me it was most likely hereditary. It sounds like the doctor wasn't really well versed in all of the different causes of neuropathy. Diabetes is a major cause of neuropathy but it's certainly not a case of diabetes or idiopathic (we don't know). Neuropathy Commons has a list of causes here if you want to do a little research - https://neuropathycommons.org/neuropathy/causes-neuropathy.

I'm not sure how they diagnose neuropathy from Covid but there have been some studies. Here's one of the studies:
-- Case-Control Study of Individuals With Small Fiber Neuropathy After COVID-19:
https://www.neurology.org/doi/full/10.1212/NXI.0000000000200244
If you want to see other medical research on possible causes, Google Scholar has a good list here - https://scholar.google.com/scholar?as_ylo=2024&q=neuropathy+caused+by+covid&hl=en&as_sdt=0,24.

Have you found a treatment that helps your neuropathy symptoms?

REPLY
1 reply
mistymom | @mistymom | Nov 29 8:42am

I thought the Prolia and Covid shots started my neuropathy, and made it worse each time I had a shot

REPLY
texgal57 | @texgal57 | Dec 3 10:02pm
In reply to @johnbishop "Welcome @texgal57, My neuropathy diagnosis is also idiopathic and my neurologist told me it was most..." + (show)
@johnbishop

Welcome @texgal57, My neuropathy diagnosis is also idiopathic and my neurologist told me it was most likely hereditary. It sounds like the doctor wasn't really well versed in all of the different causes of neuropathy. Diabetes is a major cause of neuropathy but it's certainly not a case of diabetes or idiopathic (we don't know). Neuropathy Commons has a list of causes here if you want to do a little research - https://neuropathycommons.org/neuropathy/causes-neuropathy.

I'm not sure how they diagnose neuropathy from Covid but there have been some studies. Here's one of the studies:
-- Case-Control Study of Individuals With Small Fiber Neuropathy After COVID-19:
https://www.neurology.org/doi/full/10.1212/NXI.0000000000200244
If you want to see other medical research on possible causes, Google Scholar has a good list here - https://scholar.google.com/scholar?as_ylo=2024&q=neuropathy+caused+by+covid&hl=en&as_sdt=0,24.

Have you found a treatment that helps your neuropathy symptoms?

Jump to this post

This was a neurologist I was referred to. I only saw him for the nerve testing.

I've tried Gabapentin, Lyrica, Amitriptyline, Duloxetine and currently I have a Spinal Cord Stimulator that I'm having removed. Nothing has helped.

REPLY
1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Dec 4 7:09am
In reply to @texgal57 "This was a neurologist I was referred to. I only saw him for the nerve testing...." + (show)
@texgal57

This was a neurologist I was referred to. I only saw him for the nerve testing.

I've tried Gabapentin, Lyrica, Amitriptyline, Duloxetine and currently I have a Spinal Cord Stimulator that I'm having removed. Nothing has helped.

Jump to this post

I wouldn't give up on a search for something that might provide relief for your neuropathy pain. @solobee1 mentioned using low dose naltrexone (LDN) in another discussion here - https://connect.mayoclinic.org/comment/1152851/. There's also a discussion that might be helpful for learning what has helped others find relief.

-- Ideas for pain relief from Small Fiber Neuropathy (SFN): https://connect.mayoclinic.org/discussion/ideas-for-pain-from-small-fiber-neuropathy/

REPLY
View MoreView Less
Please sign in or register to post a reply.