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NET of the Rectum: Anyone at Mayo Jacksonville? What can I expect?
Neuroendocrine Tumors (NETs) | Last Active: Nov 29 3:06pm | Replies (9)Comment receiving replies
Hello,
Can you tell me what caused you to even look at the rectum for Neuroendocrine Carcinoma? I have been having excruciating pain on my right side of the lower rectum for years now and only sitting on ice gives me any relief. I also have two Neuroendocrine tumors on the top of my Pancreas, with one surgery in 2015 while in a clinical study at NIH. Having MRI and CT scans, along with the Gallium 68 Scan every year and no one has been able to tell me what is causing this terrible pain. Many thanks! Ken
Replies to "Hello, Can you tell me what caused you to even look at the rectum for Neuroendocrine..."
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Mine was found via colonoscopy. I have had stomach issues my whole life that were undiagnosed. Since I started really voicing my issues, they have found gallstones, enlarged liver, thin walled bladder, a hiatal hernia, an umbilical hernia as well as the tumor in the rectum. I guess I’m really lucky they found it sooner than later. I have always had random pain in the rectum that went dismissed for years. Maybe it’s the cause of that strange pain.