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MAC & Bronchiectasis | Last Active: Nov 30, 2024 | Replies (34)
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Hi, I found this thread cuz I had a mildly low blood sodium, the retest was in low-normal range. However, a spot ("random") urine test looks pretty high. It hadn't occurred to me that all this might be BE+MAC related!
My question is have any of you had low blood sodium levels with high urine sodium levels? And does anyone have an explanation of why BE/MAC affects blood (or urine) levels?
In the waiting stage trying to get more feedback from the (new) endocrinologist who did the tests so hopefully I get more info after the holiday. Thanks in advance!
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I just got out of the hospital for 3 days for low sodium in blood. My Pulmonologist sent a sputum sample to Mayo in Rochester after my 1st time with low sodium in August ( November low sodium was my second incident) and it came back negative for MAC. I have BE and Pulmonary Fibrosis. I was drinking a lot of water to help keep the mucus thinned, and the hospital had a nephrologist (Kidney Doctor) see me who determined that because of my lung diseases it triggered the release of a hormone in my body to have my kidney retain as much water as possible to help the injured organ (Lungs) I think he called it SGIH hormone or something like that. I was put on fluids restriction of 60Oz max per day, salt tablets twice per day and furosemide 20 mg once per day. When I went into the hospital my sodium was 122. (Minimum normal is 136) after 3 days I was up to 133, and discharged on the 13th. Keeping the same treatment at home my blood test on the 25th sodium was at 137. So I believe the Kidney Dr. was right on with his diagnosis. Good luck with your situation.