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@jc76

@jcmacqueen
Did your R/O advise about rectal bleeding?
My R/O and the information provided to me stated that the radiation can damage your rectum and cause bleeding. I was advised that the small blood vessels can be damaged and when knew vessels form they are very prone to bleeding.

Constipation and hard stools can add to it. The vessels I was told would eventually mature and not be so prone to bleeding. However, was told the bleeding would be more like noticing it on toilet paper, seen in feces, or notice in toilet.

I think you say yours is significant bleeding. I would check with your R/O or whomever did your radiation and let them know about the significant bleeding.

Did you have high dose or low dose? My PCP says the high dose (stronger radiation but less treatments) can lead to more significant side affects for some. When you had your radiation did you have the Space/Oar? This was a gel injected to move your rectum away from prostate to help limit radiation damage to it. If you did not have it down it could have lead to more damage but this is something you should discuss with your R/O.

I did have some minor bleeding several months after radiation stopped. It has gone away now. I had proton radiation with Space/Oar and 30 rounds (not the hight dose regiment) in May/June/July of 2023.

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Replies to "@jcmacqueen Did your R/O advise about rectal bleeding? My R/O and the information provided to me..."

They did use the OAR spacer fel, but it slipped around out of position and thus was less effective. I had been advised of the potential for bleeding but I was concerned that it had been 6 months since treatment. I was told that time frame would not be unexpected. I'm having a colonoscopy next month that can offer some laser treatment if advised. Constipation may have been the culprit and we are correcting that. Thanks!

@jc76 i completed my 5-treatment SBRT last Monday and noticed a little blood on toilet paper yesterday and this morning. I didn't have Space OAR; my oncologist said I didn't need it because I had gold seeds (fiducial markers) implanted on my prostate for MRI-Guided radiation planning. Your minor bleeding was several months after radiation stopped; did it get a little worse before it went away? My oncologist said my immediate side effects will peak 3 or 4 weeks after my last treatment. On my 4th week after last radiation, I will be on a cruise so I am a bit worried if my minor bleeding now will get much worse at that point.