Hello Jay,

I unfortunately bid you welcome to this group, where you will find much good advice from others who have tried this path before you.

First, I currently live in rural Tennessee and have for about 8 years. Prior to that, for about 15 years I lived off the grid in Colorado. Eastern slope, pretty much straight west into the mountains from Fort Collins, so I am very curious as to where you live in Colorado.

I am 81 years old and am coming to the end of this journey, so I can give you a lot of first hand experience.

My prostate cancer hit very suddenly and completely all at once around five years ago. My initial biopsy came back a ten and the prostate cancer had already gone from nothingness to having fully metastasized throughout my bones and lymph nodes.. one day I was running around doing farm chores on our 30 acres and the next thing I knew I was bedridden with cancer .

Website just shut me off in the middle. I'm back now.

One thing I have learned is to not get freaked out by my PSA readings. My experience is they may be indicative, but they are the end all and be all holy Grail of measurements we are led to believe in the beginning. I'm not saying ignore them. I'm just saying take with a grain of salt and in context with everything else you have going.

I always get my PSA and testosterone levels measured with every blood test, which is every time I see my oncologist. He is good, but sometimes PSA and testosterone test gets lost in the shuffle. I always ask the person drawing the blood what is on their list of tests that they are drawing blood for. If they don't have PSA and testosterone on their list I ask them to make sure to draw enough so they can add it. Then, when I get in to see the doctor I inform him of the situation, he adds those two tests to his request list and everything is good.

Where to start? Maybe we should start by you telling me what your oncologist is proposing. I have probably had everything. I am literally at the end of the road, having exhausted all of the official FDA approved treatments. We are now at the point where I am the guinea pig for a 100% completely non FDA approved off the wall experimental combination of two new completely unproven drugs my oncologist thinks might work. We'll try it and find out.

Meantime, tell me what your oncologist is proposing and that will guide me in sharing my 5 years of experience on this path.

Let me tell you buck up. Have faith. You are just at the beginning. Much help and support is available to you through this website.

Robert