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← Return to Precursor symptoms to PMR?
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Hello Stick
I had no idea the jaw pain and electrical taps to the face were a precursor to a flare of PMR.
My PMR started 15 years ago with debilitating pain to my pelvic bones, shoulder and arms. I was prescribed 20 mg to start and told to start weaning down 1 mg. every month. It took about 5 years to get off the meds.
I have had at least 3 flare ups since then, and I am dealing with one now. I am on 8 mg. and the Dr. mentioned when I get down to 5mg., if I am still hurting he is going to try me on Kevzara. I have read the side effects and I am troubled by what they are.
Do you have any info on this med?
Replies to "Hello Stick I had no idea the jaw pain and electrical taps to the face were..."
I will defer to people who have actually taken Kevzara.
I'm on a similar biologic called Actemra. It is similar in the sense that both Kevzara and Actemra block the effects of the Il-6 cytokine that is implicated in PMR and GCA.
There is a good video contained in the following link:
https://www.pmrandil6.com/il-6-and-pmr/
There are additional tabs about the current standards of care and general information about PMR and GCA.
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An electrified face isn't a precursor to PMR flares in most people. It was another condition I had that got involved whenever my inflammation wasn't controlled.
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So sorry you’re going through this ❤️ I don’t have any info about anything, unfortunately. Newbie. Also, in Canada, so likely treatment will differ. I see a rheumatologist first time next week so hoping for information. My family doc didn’t even examine me. She listened to me, did blood work that showed elevated CRP last month, repeat CRP this week was even higher (doubled). Have been on prednisone for just over a month. RBCs, hemoglobin, hematocrit low. Ferritin normal. 🤷♀️