6 months of unexplained twitches throughout body, high WBC

I had the same thing after what I consider long covid (along with other symptoms) Did see neuro and had all muscle tests and blood work,all normal. They have eased up a bit. A university of Alberta researcher recently have discovered low taurine levels with long covid cases. Interestingly enough I read on another site how this woman’s benign fasciculations have improved immensely with taurine. ( do your own DD) neuro also gave me clonazapam..an addictive drug. Good luck. They are bothersome.

How often do you get the twitches?

Hi I am in healthcare too. My twitches, which I now call Benign fasculations started 3 years and to me they started when I developed healthcare anxiety from a weird stomach scare. I don't have any other symptoms beside once I turned 40 i have developed back pain and leg tightness which I feel stems from my back issues. My neuro doc did an emg and head mri and full body assessment and all were normal my labs were normal. I still get the twitches there are many people on here who suffer from these. I pray one day they will stop. Mine are constantly in my calfs. So weird almost feels like someone's poking me thru my skin.

When I first got the twitches last year, they were body wide and occurred at least a dozen times a day. Later, they subsided and now I get them randomly in random places, intermittently, perhaps twice a week that last less than a minute. They no longer bother me though, because I do not consider them a threat or anything serious. I believe they will eventually dissipate completely.

I have had numerous experiences with toxic fumes coming into my apartment during the night. I suspect illicit drug cooking as my inhalation of the fumes has resulted in headaches and pins an needles in my head, along with sinus problems. I now suffer from internal tremors and I assume it is from anxiety issues of not wanting to go to bed because of fume ingress during the night. I hope I am in a safe home now and no toxic fumes. I am hoping the tremors will cease in time. I only get them when laying down in bed. They also wake me up.

That is wonderful. Thank you for the update 🙂

Thank you for your reply. So fascinating. My twitches all started after I had the initial ekg and an urgent care doctor told me the readings looked like I was having a heart attack and needed to go to the ER. I had a couple days of whole body shaking, which I had only ever had when I was going into labor and was super anxious. So I feel there has to be connection.

All the other symptoms are what’s not connecting. But I do believe anxiety and stress can do crazy things, just didn’t know the effects could be so long lasting.

@berber19
From Cleveland Clinic:
"Focal dystonia is a neurological disorder. It causes involuntary muscle contractions in one body part. You may have muscle twitches in your neck, face, jaw, feet or hands. Focal dystonia that affects hands and wrists"
https://my.clevelandclinic.org/health/diseases/22796-focal-dystonia
After several years of having "mystery symptoms", I realized I had dystonia. Dystonia has to do with the "circuit board" in our brain, the basal ganglia, going "haywire". I call dystonia the "snow flake condition" because no two people with it have the same exact symptoms.

I do have sharp pain in the joints that come and go. I wear wrist braces and a neck brace each night to avoid severe numbness. When I highly use my dominant hand, my non-dominant hand will have severe cramps.

"Attempting a movement task on one side of the body may activate dystonia symptoms on the opposite side."
https://dystonia-foundation.org/
Caffeine and alcohol aggravate dystonia. (I gave up both and the symptoms decreased.) There is no medical test for dystonia. There is no treatment specific for dystonia, although doctors will try drugs, usually seizure drugs.

Check out: dystonia-foundation.org

That’s very interesting. I wish I could locate a video where the patient demonstrates focal dystonia. I think that differs from the fasciculations I had.

Here is a link to photos of hands with focal dystonia. For me, my left hand cramps up (I am right handed) while I am cooking. I put an oven glove over it to hide it. It's ugly and hurts.
https://www.researchgate.net/figure/Focal-hand-dystonias-upper-panel-with-task-specificity-Writers-cramp-and-Barbers_fig1_221928595
Focal is one example of dystonia that impacts the hands, but there are many other types. This is from the Dystonia Foundation on the other types of dystonia:

Segmental: Dystonia that affects two or more connected body parts, for example the face, neck, and arm.

Generalized: Dystonia that affects the torso and at least two other body areas, frequently the limbs.

Isolated or Primary: Dystonia is the only neurological symptom a person appears to have.

Acquired or Secondary: Dystonia that appears to have a specific cause such as drug reaction, brain injury, or as a symptom of another neurological or metabolic disorder.

Paroxysmal Dyskinesias: Dystonia may occur in episodes, often with additional movement symptoms.

Functional: Dystonia may occur as part of a functional neurological disorder.
https://dystonia-foundation.org/what-is-dystonia/