← Return to Prescribed Tymlos after Evenity

Discussion

Prescribed Tymlos after Evenity

Osteoporosis & Bone Health | Last Active: 41 minutes ago | Replies (38)

Comment receiving replies
@hollygs

@sunny65 It sounds like you've been very proactive about your care, and that's wonderful! I was put on Fosamax after Evenity by a new-to-me endo, but I had been told by my previous metabolic bone specialist that he would put me on Tymlos after Evenity. I switched back to him and started Tymlos 6 months after stopping Evenity. This delay was because it took a while to see the doctor and then to have Tymlos approved by my insurance. I responded well to Evenity and my T score went from - 4.5 to - 3.2. I won't know anything about how the Tymlos worked until my next DTX, and even then everything is relative and long-term improvement is the goal. I have read that the usual interval after Evenity is 4 weeks, but I have not heard that from a medical proessional so am not sure. Your labs and a new DTX will inform your doctor about your response to Evenity. You are correct, there is very little information available about the use of Tymlos after Evenity. As I previously mentioned on this thread, I contacted the manufacturers of both drugs and was told that currently there are no studies available about the Evenity >>Tymlos sequence. I will say that at a certain point, I was extremely stressed out about all of this. I had a painful spinal fracture, multiple rib fractures, bone marrow edema and fractures in one foot and other conditions. I could barely get around and yet I was going from doctor to doctor to labs, radiology, PT, OT and so
on. Finally, one day I paused and realized that the stress was making me worse. I could barely function, I was exhausted and I couldn't do all of this. I decided to eliminate stress, and relax as much as possible. I took a break from all the medical stuff except getting the Evenity once a month, listened to music, meditated and focused on positive things and eventually I was calm, not overwhelmed and better able to proceed with my life. I hope you will gift yourself compassion and kindness. You're handling an awful lot, and you've been very strong. You don't need to carry it all the time.

Jump to this post


Replies to "@sunny65 It sounds like you've been very proactive about your care, and that's wonderful! I was..."

@hollygs ,
Thank you for response. You are right about stress. The most is due to pain and thinking that I am going to be bedridden for the rest of my life. I am not sure if Evenity is the cause of my pain but definitely contributing to it. My lower back pain started a couple months before Evenity. I slipped and fall in 2022 I thought that I fractured my back but x- rays didn’t reflect fractures. I found out about fractures in my vertebrae at the beginning of 2023 after bone scan. They hurt but stopped in a couple of months. My doctor wasn’t concerned so much and told me to see endocrinologist in the future and do DEXA test .It was very busy time between my very sick mom and job- so I didn’t go for a few months and when my DEXA test last September came out -4.8- everyone got concerned. But I didn’t have so much pain. I know it doesn’t do any good blaming myself now. But I delayed to start medication - Evenity till July . It took time to find a doctor and insurance approval. I went and had another DEXA test in October ( after 5 injections) and my T score was even worse ( same place I had the first one) -5.1. . Not sure what to make of it but endocrinologist is saying that it’s not about numbers but about fractures. I am still seeing my pain doctor on Monday and later next week MRI. After that I decide if I insist to go on Tymlos or finish Evenity and then see if I will be approved Tymlos or have to do something else. I tried to meditate but so far don’t doing much. I probably should try harder to fight my stress.