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That’s impressive that you’ve had no loss of muscle mass or increased fat mass! I aspire to that. I have a localized Gleason 8 PSMA Pet negative and close to choosing between RP + ADT vs IMRT+Brachy+ ADT. Initially my radiation oncologist Dr. Sayed (Memorial Care) said he was on the fence whether he’d recommend ADT since he wasn’t sure if get much benefit. I’ve just recently learned about the Decipher test and am in the process of ordering it. Did you start out with Lupron? This is what he’s suggesting now. He changed his mind and thinks I should do 1 Lupron shot 5 weeks prior to radiation then another 3 months post radiation perhaps with Orgovxy.
I’m concerned about long term ADT and my workload (consulting) as well as all the other side effects. Any insights are appreciated.
My other option is RARP using the Davinci single port with Dr. Moses Kim at Orange County Urology with 6 months ADT.
I’m leaning towards surgery because I already cystitis and chronic bladder and urinary pain with concerns about potential secondary cancers or tissue damage. I’m 60 and single.
Again any insights are appreciated.
Thank you
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I had a computer consulting business and took four days off to have surgery. I didn’t do a whole lot on the fourth day after surgery just sat down in a few computers and fixed some issues, But I was able to do it and get to multiple offices that day. I was not on Lupron, however.
Starting on Lupron before your treatment is a good idea. I know a lot of people that did that before radiation and in many cases, the size of their metastasis reduce. It also stops your cancer from growing.
The side effects of Lupron vary A lot. I never had Much fatigue and was on it for seven years. I did have a lot of hot flashes, Muscle deterioration and brain fog. If you get a lot of fatigue come Back to the forums and we can help.
Not everyone gets a lot of hot flashes, if they bother you a lot come in here and we can help you Reduce the effects of them. The muscle deterioration could be offset by going to the gym regularly doing weight training exercises, and walking a couple of miles a day at least. The brain fog doesn’t start right away, but there’s not a whole lot you can do about it. Doing a lot of exercise can also beat the fatigue, see how it works for you.
The radiation can affect your bladder. If you’d get something like MRIdian Radiation it can reduce the amount of tissue affected around the area that is being treated. Surgery does avoid that problem.
There are other options beside surgery and radiation. HIFU, cryotherapy, TULSA-PRO and more options are available. They would avoid damaging your bladder, You can look into whether one of them makes sense for you.