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Dr Mark Scholz/PCRI
Anyone here is a patient of Dr Mark Scholz of Prostate Cancer Research Institute. I need to get a second opinion from an Oncologist about how long I should be on Orgovyx based on the risk/benefits. I would on Orgovyx for 9 months end of December.
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Even though Dr Scholz told me that I can take a holiday from Orgovyx now, I am inclined to stay on it for 12 months! He said I will feel better and little benefit for staying on Orgovyx longer.
I will post here my path to fight this disease. I probably shouldn't say "fight this disease', rather adopt to this disease! It will be too stressful if we constantly think of fighting, in my opinion.
That doesn't mean we surrender to it physically or emotionally.
The radiation oncologist is really only there to support you with radiation treatment. You should have a Genito urinary oncologist to handle your long-term needs. They specialize in prostate cancer and know What treatments you should be getting? Medical oncologist Work with many different types of cancer and don’t specialize on prostate cancer.
You should go to a center of excellence, Like the mayo clinic If there is one you can get to. There are many other centers of excellence as well. You just have to find one. Giving your location here we could probably help with that.
Kishan is also a urologist. But I think I may need a referral. I live in Thousand Oaks ca.
Dr Kishan is not a urologist. But that is irrelevant! Ask his office to give you a referral to an oncologist that works with prostate cancer patients extensively. Not many oncologists survive treating only prostate cancer!
How about Dr John Shen MD Medical oncologist, UCLA. He comes to Encino, less than 20 miles from Thousand oaks.
Whenever I feel a strong PSA/APC angst coming on Dr. Mark Scholz of Prostate Cancer Research Institute is my go-to oncologist resource. I am now 4 years in on this advanced prostate cancer journey and he's served me well.
Good to know. Stay strong and healthy as much as possible.
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1 ReactionUCLA has some really good doctors that can manage a case like yours with the correct treatment.
Doctor Scholz In Marina del Rey Is a great choice. Take a look at his PCRI videos on YouTube. He gives some great talks, and you know he has a real grasp of just about everything related to prostate cancer
I feel blessed that Dr. Scholz is located near me and I will try to set up a consult with him immediately. Thank you so much!
That’s impressive that you’ve had no loss of muscle mass or increased fat mass! I aspire to that. I have a localized Gleason 8 PSMA Pet negative and close to choosing between RP + ADT vs IMRT+Brachy+ ADT. Initially my radiation oncologist Dr. Sayed (Memorial Care) said he was on the fence whether he’d recommend ADT since he wasn’t sure if get much benefit. I’ve just recently learned about the Decipher test and am in the process of ordering it. Did you start out with Lupron? This is what he’s suggesting now. He changed his mind and thinks I should do 1 Lupron shot 5 weeks prior to radiation then another 3 months post radiation perhaps with Orgovxy.
I’m concerned about long term ADT and my workload (consulting) as well as all the other side effects. Any insights are appreciated.
My other option is RARP using the Davinci single port with Dr. Moses Kim at Orange County Urology with 6 months ADT.
I’m leaning towards surgery because I already cystitis and chronic bladder and urinary pain with concerns about potential secondary cancers or tissue damage. I’m 60 and single.
Again any insights are appreciated.
Thank you